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Bidirectional association between frailty and quality of life within English longitudinal study of aging
Bidirectional association between frailty and quality of life within English longitudinal study of aging
The relationship between quality of life (QoL) and frailty has previously been investigated cross-sectionally and longitud...
Impact of arterial stiffness on health-related quality of life in older Thai adults with treated HIV infection: a multicenter cohort study
Impact of arterial stiffness on health-related quality of life in older Thai adults with treated HIV infection: a multicenter cohort study
Despite advancements in antiretroviral therapy (ART) that extend life expectancy, older adults with HIV (OAHIV) face eleva...
Pharmacist-facilitated Patient Reported Outcome Measure (PROM) monitoring: developing an EHR SmartForm© to monitor side effects of oral oncolytics during routine telehealth encounters
Pharmacist-facilitated Patient Reported Outcome Measure (PROM) monitoring: developing an EHR SmartForm© to monitor side effects of oral oncolytics during routine telehealth encounters
Patient reported outcome measures (PROMs) are increasingly used in oncology care, but pharmacists providing direct patient...
Association of adverse events and quality of life in patients with unresectable hepatocellular carcinoma
Association of adverse events and quality of life in patients with unresectable hepatocellular carcinoma
Hepatocellular carcinoma (HCC) is the third-leading cause of cancer-related deaths globally. Patients are often diagnosed ...
Impact of rehabilitation with dental implants on the quality of life of patients undergoing maxillofacial reconstruction: a systematic review
Impact of rehabilitation with dental implants on the quality of life of patients undergoing maxillofacial reconstruction: a systematic review
Maxillofacial reconstruction with dental implants in microvascular tissue flaps aims to improve mastication. However, the ...
One-year trajectories of physical and mental health-related quality of life, fatigue and dyspnoea in COVID-19 survivors
One-year trajectories of physical and mental health-related quality of life, fatigue and dyspnoea in COVID-19 survivors
A substantial number of people experience a persisting impact on health-related quality of life (HRQoL) after COVID-19. Th...
Health-related quality of life in 205 children with arthrogryposis multiplex congenita
Health-related quality of life in 205 children with arthrogryposis multiplex congenita
Arthrogryposis multiplex congenita (AMC) describes a heterogeneous group of rare congenital conditions. Health-related qua...
Development of the celiac disease symptom diary version 2.1© (CDSD 2.1©) patient-reported outcome measure
Development of the celiac disease symptom diary version 2.1© (CDSD 2.1©) patient-reported outcome measure
For patients with celiac disease (CeD), the only current management option is adherence to a strict gluten-free diet (GFD)...
The humanistic burden of immunoglobulin A nephropathy on patients and care-partners in the United States
The humanistic burden of immunoglobulin A nephropathy on patients and care-partners in the United States
This cross-sectional survey study quantified the humanistic burden of immunoglobulin A nephropathy (IgAN), in terms of phy...
Testing the psychometric characteristics of EQ-5D-5L and respiratory bolt-ons using a sample of the Australian population
Testing the psychometric characteristics of EQ-5D-5L and respiratory bolt-ons using a sample of the Australian population
The EQ-5D has been used to assess health related quality of life (HRQoL) in respiratory conditions. However, the core desc...
Quality of life of inflammatory bowel diseases patients in france with EQ-5D-5 L: the QALY-MICI study
Quality of life of inflammatory bowel diseases patients in france with EQ-5D-5 L: the QALY-MICI study
This study aimed to document utility values and the Visual Analog Scale (VAS) with the 5-level version of the EQ-5D questi...
Trajectory of health-related quality of life during and after hospitalisation due to worsening of heart failure
Trajectory of health-related quality of life during and after hospitalisation due to worsening of heart failure
This study aimed to examine the trajectory in health-related quality of life (HRQoL) during and after hospitalisation for ...
Health-related quality of life dynamics: modeling insights from immunotherapy
Health-related quality of life dynamics: modeling insights from immunotherapy
Understanding health-related quality of life (HRQoL) dynamics is essential for assessing and improving treatment experienc...
Japanese value set for the EORTC QLU-C10D: A multi-attribute utility instrument based on the EORTC QLQ-C30 cancer-specific quality-of-life questionnaire
Japanese value set for the EORTC QLU-C10D: A multi-attribute utility instrument based on the EORTC QLQ-C30 cancer-specific quality-of-life questionnaire
This study aimed to develop a Japanese value set for the EORTC QLU-C10D, a multi-attribute utility measure derived from th...
Influence of frailty status on the health-related quality of life in older patients with chronic low back pain: a retrospective observational study
Influence of frailty status on the health-related quality of life in older patients with chronic low back pain: a retrospective observational study
Understanding the influence of frailty on health-related quality of life (HRQoL) in older individuals experiencing chronic...
Long-term effects of the COVID-19 pandemic for patients with cancer
Long-term effects of the COVID-19 pandemic for patients with cancer
Long COVID is defined as the continuation of symptoms, unexplainable by alternative diagnosis, longer than four weeks afte...
Illness presentation and quality of life in myalgic encephalomyelitis/chronic fatigue syndrome and post COVID-19 condition: a pilot Australian cross-sectional study
Illness presentation and quality of life in myalgic encephalomyelitis/chronic fatigue syndrome and post COVID-19 condition: a pilot Australian cross-sectional study
Post COVID-19 Condition (PCC), being persistent COVID-19 symptoms, is reminiscent of Myalgic Encephalomyelitis/Chronic Fat...
Methodological quality of 100 recent systematic reviews of health-related outcome measurement instruments: an overview of reviews
Methodological quality of 100 recent systematic reviews of health-related outcome measurement instruments: an overview of reviews
Systematic reviews evaluating and comparing the measurement properties of outcome measurement instruments (OMIs) play an i...
Demonstrating responsiveness of the pediatric cardiac quality of life inventory in children and adolescents undergoing arrhythmia ablation, heart transplantation, and valve surgery
Demonstrating responsiveness of the pediatric cardiac quality of life inventory in children and adolescents undergoing arrhythmia ablation, heart transplantation, and valve surgery
Pediatric Cardiac Quality of Life Inventory (PCQLI) is a disease-specific pediatric cardiac health-related quality of life...
Measuring what matters to older persons for active living: part I content development for the OPAL measure across four countries
Measuring what matters to older persons for active living: part I content development for the OPAL measure across four countries
Many older persons do not think of themselves as “patients” but as persons wishing to live as actively as poss...
Disabled from work and depressed: cognitive factors associated with exacerbated or attenuated depression over the COVID-19 pandemic
Disabled from work and depressed: cognitive factors associated with exacerbated or attenuated depression over the COVID-19 pandemic
People who were disabled from working reported substantially worse depression in recent research [1] despite adjustment fo...
Development of a PROMIS multidimensional cancer-related fatigue (mCRF) form using modern psychometric techniques
Development of a PROMIS multidimensional cancer-related fatigue (mCRF) form using modern psychometric techniques
To develop a PRO assessment of multidimensional cancer-related fatigue based on the PROMIS fatigue assessments. Cancer pat...
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024
Although comprehensive and widespread guidelines on how to conduct systematic reviews of outcome measurement instruments (...
Stability and change in maternal wellbeing and illbeing from pregnancy to three years postpartum
Stability and change in maternal wellbeing and illbeing from pregnancy to three years postpartum
Motherhood affects women’s mental health, encompassing aspects of both wellbeing and illbeing. This study investigat...
Patient experiences in ulcerative colitis: conceptual model and review of patient-reported outcome measures
Patient experiences in ulcerative colitis: conceptual model and review of patient-reported outcome measures
To identify symptoms and their impacts on daily functioning and health-related quality of life (HRQoL) experienced by adul...
An effort to improve the collection of patient-generated data: readability and understandability of patient-reported outcomes measures in a survivorship cohort
An effort to improve the collection of patient-generated data: readability and understandability of patient-reported outcomes measures in a survivorship cohort
In this study, we evaluated readability and understandability of nine French-language Patient-Reported Outcome Me...
The Hemodialysis Distress Thermometer for Caregivers (HD-DT-C): development and testing of the psychometric properties of a new tool for screening psychological distress among family caregivers of adults on hemodialysis
The Hemodialysis Distress Thermometer for Caregivers (HD-DT-C): development and testing of the psychometric properties of a new tool for screening psychological distress among family caregivers of adults on hemodialysis
To develop and test the measurement properties of the HD-DT-C, a new tool designed to facilitate the screening of psycholo...
Health-related quality of life and associated risk factors in patients with Multiple Osteochondromas: a cross-sectional study
Health-related quality of life and associated risk factors in patients with Multiple Osteochondromas: a cross-sectional study
To evaluate the health-related quality of life and associated risk factors for Multiple Osteochondromas patients. A cross-...
Reciprocal association between pain and quality of life after newly acquired spinal cord injury
Reciprocal association between pain and quality of life after newly acquired spinal cord injury
Pain is highly prevalent in spinal cord injury (SCI) and a key determinant of quality of life (QoL). This is the first stu...
When better is the enemy of good: two cautionary tales of conceptual validity versus parsimony in clinical psychometric research
When better is the enemy of good: two cautionary tales of conceptual validity versus parsimony in clinical psychometric research
This paper presents an empirical challenge to the assumption that an item-response theory analysis always yields a better ...
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