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“I don't know whether I will be alive or not” - An interpretative phenomenological analysis of young adult males with Duchenne Muscular Dystrophy making sense of self and life
“I don't know whether I will be alive or not” - An interpretative phenomenological analysis of young adult males with Duchenne Muscular Dystrophy making sense of self and life
BackgroundWith ventilatory support, boys with Duchenne Muscular Dystrophy (DMD) now live longer. The emerging adulthood of...
Comparative study of poverty dynamics and income structure: Pre and post COVID-19 impact on households with and without disabilities in South Korea
Comparative study of poverty dynamics and income structure: Pre and post COVID-19 impact on households with and without disabilities in South Korea
Poverty eradication is a significant primary response to achieving sustainable development and mitigating social and struc...
Changes in postpartum insurance and care use by disability status during the COVID-19 pandemic
Changes in postpartum insurance and care use by disability status during the COVID-19 pandemic
An estimated 12 % of reproductive aged women in the U.S. have a disability.1 Ensuring that people with disabilities have a...
Resources, relationships, and resilience: The psychosocial experiences of women with lower limb absence during pregnancy and postpartum
Resources, relationships, and resilience: The psychosocial experiences of women with lower limb absence during pregnancy and postpartum
There is limited existing research on the experiences of women with physical disabilities (PD) during pregnancy,1, 2, 3, 4...
Exploring healthcare barriers and satisfaction levels among deaf individuals in Ecuador: A video-based survey approach
Exploring healthcare barriers and satisfaction levels among deaf individuals in Ecuador: A video-based survey approach
Hearing loss, a medical condition marked by partial or complete impairment of auditory function, can manifest as congenita...
Covid-19 patterns among adults with intellectual and developmental disability and the general population in New York state during the first year of the pandemic
Covid-19 patterns among adults with intellectual and developmental disability and the general population in New York state during the first year of the pandemic
There is empirical evidence that people with intellectual and developmental disabilities (IDD) in the US experienced compa...
“We need a world we can operate in”: Exploring the relationship between societal stigma and depression among wheelchair users
“We need a world we can operate in”: Exploring the relationship between societal stigma and depression among wheelchair users
Available online 9 April 2024, 101624Author links open overlay panel, , AbstractBackgroundStigma looms over the disability...
The physical and psychosocial benefits of a family judo program for parents of children with Autism Spectrum Disorder: A pilot study
The physical and psychosocial benefits of a family judo program for parents of children with Autism Spectrum Disorder: A pilot study
BackgroundParents of children with Autism Spectrum Disorder (ASD) tend to have high levels of stress and poor health habit...
Oral contraceptive use in women with spina bifida in Sweden
Oral contraceptive use in women with spina bifida in Sweden
Available online 16 April 2024, 101627Author links open overlay panel, , AbstractBackgroundThanks to improved medical care...
Digital platforms to facilitate physical activities for people with physical or sensory disabilities: A scoping review
Digital platforms to facilitate physical activities for people with physical or sensory disabilities: A scoping review
Fifteen percent of the global population lives with one or multiple disabilities,1 representing approximately 1.5 billion ...
The design and methodology for a pilot study of home and community-based services outcome measures
The design and methodology for a pilot study of home and community-based services outcome measures
High-quality, psychometrically-sound measurement is essential to obtaining useful information about the impact of Home- an...
Personal assistance, independent living, and people with disabilities: An international systematic review (2013–2023)
Personal assistance, independent living, and people with disabilities: An international systematic review (2013–2023)
Available online 17 April 2024, 101630Author links open overlay panel, , , AbstractBackgroundThe article discusses the con...
Cancer stages and mortality risk of breast cancer between women with and without disabilities: A national population-based cohort study in Taiwan
Cancer stages and mortality risk of breast cancer between women with and without disabilities: A national population-based cohort study in Taiwan
Globally, women are most likely to develop breast cancer, representing more than one in ten new cancer diagnoses each year...
Depressive symptoms and activity engagement in autistic adolescents and those with other developmental disabilities
Depressive symptoms and activity engagement in autistic adolescents and those with other developmental disabilities
Depression is a common mental health condition defined by pervasive feelings of sadness and/or loss of interest in rewardi...
Identifying priorities for Australian disability research using Q methodology
Identifying priorities for Australian disability research using Q methodology
Available online 23 April 2024, 101634Author links open overlay panel, , , , , AbstractBackgroundGlobally, there are over ...
Piloting the effectiveness of the Workout on Wheels Internet Intervention (WOWii) program among individuals with mobility disabilities
Piloting the effectiveness of the Workout on Wheels Internet Intervention (WOWii) program among individuals with mobility disabilities
Physical activity (PA) remains a leading health indicator of the federal Healthy People Initiative begun in 1979, yet peop...
What some physicians say about caring for patients with disability: Responses to open-ended question to nationwide physician survey
What some physicians say about caring for patients with disability: Responses to open-ended question to nationwide physician survey
For more than 50 years, federal disability civil rights laws have mandated that patients with disability receive equitable...
The Perceived Influence of a Physical Activity Intervention on the Intentions of Parents of Autistic Children Towards Physical Activities
The Perceived Influence of a Physical Activity Intervention on the Intentions of Parents of Autistic Children Towards Physical Activities
Physical activity (PA) is vital for children's health and well-being, defined as any muscle-induced bodily movement increa...
Physical activity as a mediator in the relationship between health locus of control and health-related quality of life in multiple sclerosis patients with different disease duration
Physical activity as a mediator in the relationship between health locus of control and health-related quality of life in multiple sclerosis patients with different disease duration
Quality of life research is conducted in many areas of human functioning. It is undertaken by representatives of various s...
Defining pre-existing disability among adults captured by the National Trauma Data Bank: A descriptive assessment of patient characteristics and details of injury
Defining pre-existing disability among adults captured by the National Trauma Data Bank: A descriptive assessment of patient characteristics and details of injury
Literature assessing emergency care following trauma among people with disability (PWD) is limited. Prior research has typ...
Reproductive justice for disabled people post-Dobbs: A call-to-action for researchers
Reproductive justice for disabled people post-Dobbs: A call-to-action for researchers
Available online 6 December 2023, 101572Author links open overlay panelAbstractThe recent Supreme Court ruling in Dobbs v....
Identifying victimization clusters across people with intellectual disabilities: A latent class analysis
Identifying victimization clusters across people with intellectual disabilities: A latent class analysis
Available online 7 December 2023, 101573Author links open overlay panel, , AbstractBackgroundResearch has shown high rates...
Disability and COVID-19: Challenges, testing, vaccination, and postponement and avoidance of medical care among minoritized communities
Disability and COVID-19: Challenges, testing, vaccination, and postponement and avoidance of medical care among minoritized communities
Approximately one in four adults in the United States (U.S.) live with a disability that affects major life activities, an...
Differences in participation between young adults with cerebral palsy and their peers: A cross-sectional multicentre European study
Differences in participation between young adults with cerebral palsy and their peers: A cross-sectional multicentre European study
According to the United Nations Convention on the Rights of Persons with Disabilities “Persons with disabilities include t...
A year of milestones and US policy shifts in disability and health – A review of 2023.
A year of milestones and US policy shifts in disability and health – A review of 2023.
Available online 21 November 2023, 101555Author links open overlay panelMonika Mitra, Margaret TurkShow moreRecommended ar...
Variation in identifying children and adolescents with disability and developmental disability in population-based public health surveys
Variation in identifying children and adolescents with disability and developmental disability in population-based public health surveys
Understanding the prevalence of developmental disability (DD) is important for evaluating risk and protective factors and ...
Reviewer Appreciation - 2023
Reviewer Appreciation - 2023
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Quality of life, satisfaction with care, and the experiences of adults with intellectual and developmental disabilities before and during COVID-19
Quality of life, satisfaction with care, and the experiences of adults with intellectual and developmental disabilities before and during COVID-19
BackgroundAdults with intellectual and developmental disabilities (IDD) experienced significant disruptions in their acces...
Counting disability in the National Health interview Survey and its consequence: Comparing the American Community Survey to the Washington Group disability measures
Counting disability in the National Health interview Survey and its consequence: Comparing the American Community Survey to the Washington Group disability measures
BackgroundThe objective of the National Health Interview Survey (NHIS) is to provide data that can be used to monitor the ...
Unmet need for medical care among Medicare beneficiaries by health insurance literacy and disability
Unmet need for medical care among Medicare beneficiaries by health insurance literacy and disability
Adults with disabilities in the United States often experience unmet need for medical care,1,2 which can have significant ...
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