Translation and validation of a Chinese version of the pancreatitis quality of life instrument (PANQOLI) in patients with chronic pancreatitis

Gardner, T. B., Adler, D. G., Forsmark, C. E., Sauer, B. G., Taylor, J. R., & Whitcomb, D. C. (2020). ACG clinical guideline: Chronic pancreatitis. American Journal of Gastroenterology, 115(3), 322–339. https://doi.org/10.14309/ajg.0000000000000535

Article  PubMed  Google Scholar 

Beyer, G., Habtezion, A., Werner, J., Lerch, M. M., & Mayerle, J. (2020). Chronic pancreatitis. Lancet, 396(10249), 499–512. https://doi.org/10.1016/s0140-6736(20)31318-0

Article  PubMed  Google Scholar 

Vege, S. S., & Chari, S. T. (2022). Chronic Pancreatitis. New England Journal of Medicine, 386(9), 869–878. https://doi.org/10.1056/NEJMcp1809396

Article  PubMed  Google Scholar 

Oh, T. K., & Song, I. A. (2020). Five-year mortality trends associated with chronic pancreatitis in South Korea: A population based cohort study. Pancreatology, 20(5), 828–833. https://doi.org/10.1016/j.pan.2020.04.024

Article  PubMed  Google Scholar 

Zou, W. B., Ru, N., Wu, H., Hu, L. H., Ren, X., Jin, G., Wang, Z., Du, Y. Q., Cao, Y. N., Zhang, L., & Chang, X. Y. (2019). Guidelines for the diagnosis and treatment of chronic pancreatitis in China (2018 edition). Hepatobiliary and Pancreatic Diseases International, 18(2), 103–109. https://doi.org/10.1016/j.hbpd.2019.02.004

Article  PubMed  Google Scholar 

Kempeneers, M. A., Issa, Y., Verdonk, R. C., Bruno, M., Fockens, P., Van Goor, H., Alofs, E., Bollen, T. L., Bouwense, S., Van Dalen, A. S., & Van Dieren, S. (2021). Pain patterns in chronic pancreatitis: A nationwide longitudinal cohort study. Gut, 70(9), 1724–1733. https://doi.org/10.1136/gutjnl-2020-322117

Article  CAS  PubMed  Google Scholar 

Parhiala, M., Sand, J., & Laukkarinen, J. (2020). A population-based study of chronic pancreatitis in Finland: Effects on quality of life. Pancreatology, 20(3), 338–346. https://doi.org/10.1016/j.pan.2020.02.005

Article  PubMed  Google Scholar 

Phillips, A. E., Faghih, M., Drewes, A. M., Singh, V. K., Yadav, D., & Olesen, S. S. (2020). Psychiatric comorbidity in patients with chronic pancreatitis associates with pain and reduced quality of life. American Journal of Gastroenterology, 115(12), 2077–2085. https://doi.org/10.14309/ajg.0000000000000782

Article  PubMed  Google Scholar 

Issa, Y., Kempeneers, M. A., Bruno, M. J., Fockens, P., Poley, J. W., Ali, U. A., Bollen, T. L., Busch, O. R., Dejong, C. H., van Duijvendijk, P., & van Dullemen, H. M. (2020). Effect of early surgery vs endoscopy-first approach on pain in patients with chronic pancreatitis: The ESCAPE Randomized clinical trial. JAMA, 323(3), 237–247. https://doi.org/10.1001/jama.2019.20967

Article  PubMed  PubMed Central  Google Scholar 

Pezzilli, R., Morselli Labate, A. M., Fantini, L., Gullo, L., & Corinaldesi, R. (2007). Quality of life and clinical indicators for chronic pancreatitis patients in a 2-year follow-up study. Pancreas, 34(2), 191–196. https://doi.org/10.1097/mpa.0b013e31802e0301

Article  PubMed  Google Scholar 

Coté, G. A., Yadav, D., Abberbock, J. A., Whitcomb, D. C., Sherman, S., Sandhu, B. S., Anderson, M. A., Lewis, M. D., Alkaade, S., Singh, V. K., & Baillie, J. (2018). Recurrent acute pancreatitis significantly reduces quality of life even in the absence of overt chronic pancreatitis. American Journal of Gastroenterology, 113(6), 906–912. https://doi.org/10.1038/s41395-018-0087-7

Article  PubMed  Google Scholar 

Fitzsimmons, D., Kahl, S., Butturini, G., Van Wyk, M., Bornman, P., Bassi, C., Malfertheiner, P., George, S. L., & Johnson, C. D. (2005). Symptoms and quality of life in chronic pancreatitis assessed by structured interview and the EORTC QLQ-C30 and QLQ-PAN26. American Journal of Gastroenterology, 100(4), 918–926. https://doi.org/10.1111/j.1572-0241.2005.40859.x

Article  PubMed  Google Scholar 

D’Haese, J. G., Ceyhan, G. O., Demir, I. E., Layer, P., Uhl, W., Löhr, M., Rychlik, R., Pirilis, K., Zöllner, Y., Gradl, B., & Foerster, D. (2014). Pancreatic enzyme replacement therapy in patients with exocrine pancreatic insufficiency due to chronic pancreatitis: A 1-year disease management study on symptom control and quality of life. Pancreas, 43(6), 834–841. https://doi.org/10.1097/mpa.0000000000000131

Article  PubMed  Google Scholar 

Johnson, C. D., Williamson, N., Janssen-van Solingen, G., Arbuckle, R., Johnson, C., Simpson, S., Staab, D., Dominguez-Munoz, E., Levy, P., Connett, G., & Lerch, M. M. (2019). Psychometric evaluation of a patient-reported outcome measure in pancreatic exocrine insufficiency (PEI). Pancreatology, 19(1), 182–190. https://doi.org/10.1016/j.pan.2018.11.013

Article  PubMed  Google Scholar 

Chrastina, J., Bednářová, D., & Ludíková, L. (2015). Quality of life in patients with chronic pancreatitis—Possibilities of measurement of the phenomenon in research. Kontakt, 17(2), e89–e95. https://doi.org/10.1016/j.kontakt.2015.04.005

Article  Google Scholar 

Wassef, W., DeWitt, J., McGreevy, K., Wilcox, M., Whitcomb, D., Yadav, D., Amann, S., Mishra, G., Alkaade, S., Romagnuolo, J., & Stevens, T. (2016). Pancreatitis quality of life instrument: A psychometric evaluation. American Journal of Gastroenterology, 111(8), 1177–1186. https://doi.org/10.1038/ajg.2016.225

Article  PubMed  Google Scholar 

Ahmed, A., Anand, A. N., Shah, I., Yakah, W., Freedman, S. D., Thomas, R., & Sheth, S. G. (2022). Prospective evaluation of sleep disturbances in chronic pancreatitis and its impact on quality of life: A pilot study. Sleep & Breathing Schlaf & Atmung. https://doi.org/10.1007/s11325-021-02541-7

Article  Google Scholar 

Aivaliotis, V. I., Lee, Y., Zia, J., Wassef, W., Abramson, M., & Park, W. (2017). Telephone-based mindfulness therapy intervention for patients with chronic pancreatitis. Digestive Diseases and Sciences, 62(2), 502–509. https://doi.org/10.1007/s10620-016-4389-6

Article  PubMed  Google Scholar 

Brislin, R. W. (1970). Back-translation for cross-cultural research. Journal of Cross-Cultural Psychology, 1(3), 185–216. https://doi.org/10.1177/135910457000100301

Article  Google Scholar 

Gorsuch, R. L. (1997). Exploratory factor analysis: Its role in item analysis. Journal of Personality Assessment, 68(3), 532–560. https://doi.org/10.1207/s15327752jpa6803_5

Article  CAS  PubMed  Google Scholar 

Tanaka, J. S. (1987). “How Big Is Big Enough?”: Sample size and goodness of fit in structural equation models with latent variables. Child Development, 58(1), 134–146. https://doi.org/10.2307/1130296

Article  Google Scholar 

Tandon, R. K., Sato, N., & Garg, P. K. (2002). Chronic pancreatitis: Asia-Pacific consensus report. Journal of Gastroenterology and Hepatology, 17(4), 508–518. https://doi.org/10.1046/j.1440-1746.2002.02762.x

Article  PubMed  Google Scholar 

Axon, A. T., Classen, M., Cotton, P. B., Cremer, M., Freeny, P. C., & Lees, W. R. (1984). Pancreatography in chronic pancreatitis: International definitions. Gut, 25(10), 1107–1112. https://doi.org/10.1136/gut.25.10.1107

Article  CAS  PubMed  PubMed Central  Google Scholar 

Ware, J., Snow, K., Ma, K., Gandek, BG. (1993). SF36 Health Survey: Manual and Interpretation Guide. Lincoln, Quality Metric, Inc, 30

Ren, X. S., Amick, B., 3rd., Zhou, L., & Gandek, B. (1998). Translation and psychometric evaluation of a Chinese version of the SF-36 health survey in the United States. Journal of Clinical Epidemiology, 51(11), 1129–1138. https://doi.org/10.1016/s0895-4356(98)00104-8

Article  CAS  PubMed  Google Scholar 

Kelley, T. L. (1939). The selection of upper and lower groups for the validation of test items. Journal of Educational Psychology, 30, 17–24. https://doi.org/10.1037/h0057123

Article  Google Scholar 

Dilorio, C. K. (2005). Measurement in health behavior: Methods for research and education. Jossey Bass.

Google Scholar 

Shoukri, M. M., Asyali, M. H., & Donner, A. (2004). Sample size requirements for the design of reliability study: Review and new results. Statistical Methods in Medical Research, 13(4), 251–271. https://doi.org/10.1191/0962280204sm365ra

Article  Google Scholar 

Almanasreh, E., Moles, R., & Chen, T. F. (2019). Evaluation of methods used for estimating content validity. Research in Social & Administrative Pharmacy, 15(2), 214–221. https://doi.org/10.1016/j.sapharm.2018.03.066

Article  Google Scholar 

Pezzilli, R., Morselli-Labate, A. M., Frulloni, L., Cavestro, G. M., Ferri, B., Comparato, G., Gullo, L., & Corinaldesi, R. (2006). The quality of life in patients with chronic pancreatitis evaluated using the SF-12 questionnaire: A comparative study with the SF-36 questionnaire. Digestive and Liver Disease, 38(2), 109–115. https://doi.org/10.1016/j.dld.2005.09.015

Article  CAS  PubMed  Google Scholar 

Cronbach, L. J. (1951). Coefficient alpha and the internal structure of tests. Psychometrika, 16(3), 297–334. https://doi.org/10.1007/BF02310555

Article  Google Scholar 

Kottner, J., Audigé, L., Brorson, S., Donner, A., Gajeweski, B. J., & Hróbjartsson, A. (2011). Guidelines for Reporting reliability and agreement studies (GRRAS) were proposed. Journal of Clinical Epidemiology, 64(1), 96–106. https://doi.org/10.1016/j.jclinepi.2010.03.002

Article  PubMed  Google Scholar 

Kaiser, H. F. (1974). An index of factorial simplicity. Psychometrika, 39(1), 31–36. https://doi.org/10.1007/BF02291575

Article  Google Scholar 

Cronk BC: How to Use SPSS: A Step-By-Step Guide to Analysis and Interpretation. In: 2002; 2002.

COSMIN methodology for systematic reviews of Patient‐Reported Outcome Measures (PROMs). Retrieved from https://www.cosmin.nl/wp-content/uploads/COSMIN-syst-review-for-PROMs-manual_version-1_feb-2018-1.pdf

Neo, J. R. J. (2017). Construct validity-current issues and recommendations for future hand hygiene research. American Journal of Infection Control, 45(5), 521–527. https://doi.org/10.1016/j.ajic.2017.01.028

Article  PubMed  Google Scholar 

Ho, P. S. Y., Jackson, S., Cao, S., & Kwok, C. (2018). Sex with Chinese characteristics: Sexuality research in/on 21st-century China. Journal of Sex Research, 55(4–5), 486–521. https://doi.org/10.1080/00224499.2018.1437593

Article  PubMed  Google Scholar 

Calabrò, R. S., Cacciola, A., Bruschetta, D., Milardi, D., Quattrini, F., Sciarrone, F., la Rosa, G., Bramanti, P., & Anastasi, G. (2019). Neuroanatomy and function of human sexual behavior: A neglected or unknown issue? Brain and behavior, 9(12), e01389. https://doi.org/10.1002/brb3.1389

Article  PubMed  PubMed Central  Google Scholar 

Streiner, D. L. (2003). Starting a

留言 (0)

沒有登入
gif