Cooper, V., Clatworthy, J., Harding, R., & Whetham, J. (2017). Measuring quality of life among people living with HIV: A systematic review of reviews. Health and Quality of Life Outcomes, 15, 1–20. https://doi.org/10.1186/s12955-017-0778-6

Article  Google Scholar 

Drewes, J., Gusy, B., & Von Ruden, U. (2013). More than 20 years of research into the quality of life of people with HIV and AIDS—A descriptive review of study characteristics and methodological approaches of published empirical studies. Journal of the International Association of Providers of AIDS Care, 12(1), 18–22.

Article  PubMed  Google Scholar 

Braithwaite, R. S., Justice, A. C., Chang, C. C. H., Fusco, J. S., Raffanti, S. R., Wong, J. B., & Roberts, M. S. (2005). Estimating the proportion of patients infected with HIV who will die of comorbid diseases. The American Journal of Medicine, 118(8), 890–898.

Article  PubMed  Google Scholar 

Grabovac, I., Veronese, N., Stefanac, S., Haider, S., Jackson, S. E., Koyanagi, A., & Smith, L. (2020). Human immunodeficiency virus infection and diverse physical health outcomes: An umbrella review of meta-analyses of observational studies. Clinical Infectious Diseases, 70(9), 1809–1815.

Article  PubMed  Google Scholar 

Engel, T., Raffenberg, M., Marzolini, C., Cavassini, M., Kovari, H., Hasse, B., & Tarr, P. E. (2018). HIV and aging–perhaps not as dramatic as we feared? Gerontology, 64(5), 446–456.

Article  PubMed  Google Scholar 

Greene, M., Covinsky, K. E., Valcour, V., Miao, Y., Madamba, J., Lampiris, H., & Deeks, S. G. (2015). Geriatric syndromes in older HIV-infected adults. Journal of Acquired Immune Deficiency Syndromes, 69(2), 161.

Article  PubMed  Google Scholar 

Levett, T. J., Cresswell, F. V., Malik, M. A., Fisher, M., & Wright, J. (2016). Systematic review of prevalence and predictors of frailty in individuals with human immunodeficiency virus. Journal of the American Geriatrics Society, 64(5), 1006–1014.

Article  PubMed  Google Scholar 

Buta, B. J., Walston, J. D., Godino, J. G., Park, M., Kalyani, R. R., Xue, Q. L., & Varadhan, R. (2016). Frailty assessment instruments: Systematic characterization of the uses and contexts of highly-cited instruments. Ageing Research Reviews, 26, 53–61.

Article  PubMed  Google Scholar 

Engler, K., Lessard, D., & Lebouche, B. (2017). A review of HIV-specific patient-reported outcome measures. Patient, 10(2), 187–202.

Article  PubMed  Google Scholar 

Simpson, K. N., Hanson, K. A., Harding, G., Haider, S., Tawadrous, M., Khachatryan, A., & Wu, A. W. (2013). Patient reported outcome instruments used in clinical trials of HIV-infected adults on NNRTI-based therapy: A 10-year review. Health and Quality of Life Outcomes, 11(1), 1–15.

Article  Google Scholar 

Rodríguez-Mañas, L., & Feart, C. (2013). Searching for an operational definition of frailty: A Delphi method based consensus statement: The frailty operative definition-consensus conference project. Journals of Gerontology. Series A, Biological Sciences and Medical Sciences, 68(1), 62–67.

Article  PubMed  Google Scholar 

Andrew, M. K., Mitnitski, A. B., & Rockwood, K. (2008). Social vulnerability, frailty and mortality in elderly people. PLoS ONE, 3(5), e2232.

Article  ADS  PubMed  PubMed Central  Google Scholar 

Brinkman, S., & Voortman, T. (2018). The association between lifestyle and overall health, using the frailty index. Archives of Gerontology and Geriatrics, 76, 85–91.

Article  PubMed  Google Scholar 

Livshits, G., Ni Lochlainn, M., Malkin, I., Bowyer, R., Verdi, S., Steves, C. J., & Williams, F. M. (2018). Shared genetic influence on frailty and chronic widespread pain: A study from TwinsUK. Age and Ageing, 47(1), 119–125.

Article  PubMed  Google Scholar 

Lang, P. O., Michel, J. P., & Zekry, D. (2009). Frailty syndrome: A transitional state in a dynamic process. Gerontology, 55(5), 539–549.

Article  PubMed  Google Scholar 

Levasseur, M., Généreux, M., Bruneau, J. F., Vanasse, A., Chabot, É., Beaulac, C., & Bédard, M. M. (2015). Importance of proximity to resources, social support, transportation and neighborhood security for mobility and social participation in older adults: results from a scoping study. BMC Public Health, 15, 1–19.

Article  Google Scholar 

Viña, J., Salvador-Pascual, A., Tarazona-Santabalbina, F. J., Rodriguez-Mañas, L., & Gomez-Cabrera, M. C. (2016). Exercise training as a drug to treat age associated frailty. Free Radical Biology and Medicine, 98, 159–164.

Article  PubMed  Google Scholar 

Mayo, N. E. (2015). Dictionary of quality of life and health outcomes measurement (1st ed.). International Society for Quality of Life Research (ISOQOL).

Google Scholar 

Mayo, N. E. (2019). Appraisal as a unifying theory of response shift: Continuing the conversation. Quality of Life Research, 28(10), 2635–2636.

Article  PubMed  Google Scholar 

Azzopardi, R. V., Vermeiren, S., Gorus, E., Habbig, A. K., Petrovic, M., Van Den Noortgate, N., & Jansen, B. (2016). Linking frailty instruments to the international classification of functioning, disability, and health: A systematic review. Journal of the American Medical Directors Association, 17(11), 1066-e1.

Article  Google Scholar 

Bakas, T., McLennon, S. M., Carpenter, J. S., Buelow, J. M., Otte, J. L., Hanna, K. M., & Welch, J. L. (2012). Systematic review of health-related quality of life models. Health and Quality of Life Outcomes, 10, 1–12.

Article  Google Scholar 

World Health Organization. (2001). International classification of functioning, disability, and health. ICF.

Google Scholar 

Wilson, I. B., & Cleary, P. D. (1995). Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes. JAMA, 273(1), 59–65.

Article  PubMed  CAS  Google Scholar 

Ferrans, C. E., Zerwic, J. J., Wilbur, J. E., & Larson, J. L. (2005). Conceptual model of health-related quality of life. Journal of Nursing Scholarship, 37(4), 336–342.

Article  PubMed  Google Scholar 

Edwards, J. R., & Bagozzi, R. P. (2000). On the nature and direction of relationships between constructs and measures. Psychological Methods, 5(2), 155–174.

Article  PubMed  CAS  Google Scholar 

Fayers, P. M., & Hand, D. J. (2002). Causal variables, indicator variables and measurement scales: An example from quality of life. Journal of the Royal Statistical Society Series A: Statistics in Society, 165(2), 233–253.

Article  MathSciNet  Google Scholar 

Fornell, C., & Bookstein, F. L. (1982). Two structural equation models: LISREL and PLS applied to consumer exit-voice theory. Journal of Marketing Research, 19(4), 440–452.

Article  Google Scholar 

Podsakoff, P., Shen, W., & Podsakoff, P. M. (2006). The role of formative measurement models in strategic management research: Review, critique, and implications for future. Research, 3, 197–252.

Google Scholar 

Askari, S., & Fellows, L. K. (2021). Development and validation of a voice-of-the-patient measure of cognitive concerns experienced by people living with HIV. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation - An Official Journal of the International Society of Quality of Life Research, 30, 921–930. https://doi.org/10.1007/s11136-020-02679-z

Article  Google Scholar 

Hays, R. D., & Morales, L. S. (2001). The RAND-36 measure of health-related quality of life. Annals of Medicine, 33(5), 350–357.

Article  PubMed  CAS  Google Scholar 

Ware, J. E., & Gandek, B. (1998). Overview of the SF-36 health survey and the international quality of life assessment (IQOLA) project. Journal of Clinical Epidemiology, 51(11), 903–912.

Article  PubMed  Google Scholar 

Mayo, N. E., Figueiredo, S., Ahmed, S., & Bartlett, S. J. (2017). Montreal accord on patient-reported outcomes (PROs) use series–paper 2: Terminology proposed to measure what matters in health. Journal of Clinical Epidemiology, 89, 119–124.

Article  PubMed  Google Scholar 

Fried, L. P., Tangen, C. M., Walston, J., Newman, A. B., Hirsch, C., Gottdiener, J., & McBurnie, M. A. (2001). Frailty in older adults: Evidence for a phenotype. The Journals of Gerontology Series A: Biological Sciences and Medical Sciences, 56(3), M146–M157.

Article  PubMed  CAS  Google Scholar 

Theou, O., Cann, L., Blodgett, J., Wallace, L. M., Brothers, T. D., & Rockwood, K. (2015). Modifications to the frailty phenotype criteria: Systematic review of the current literature and investigation of 262 frailty phenotypes in the Survey of Health, Ageing, and Retirement in Europe. Ageing Research Reviews, 21, 78–94.

Article  PubMed  Google Scholar 

Grant, M. J., & Booth, A. (2009). A typology of reviews: An analysis of 14 review types and associated methodologies. Health Information and Libraries Journal, 26(2), 91–108.

Article  PubMed  Google Scholar 

Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288.

Article  PubMed  Google Scholar 

Mayo, N. E., Moriello, C., Asano, M., van der Spuy, S., & Finch, L. (2011). The extent to which common health-related quality of life indices capture constructs beyond symptoms and function. Quality of Life Research, 20, 621–627.

Article  PubMed  Google Scholar 

Noonan, V. K., Kopec, J. A., Noreau, L., Singer, J., Chan, A., Mâsse, L. C., & Dvorak, M. F. (2009). Comparing the content of participation instruments using the international classification of functioning, disability and health. Health and Quality of Life Outcomes, 7(1), 1–12.

Article  Google Scholar 

Solomon, D. H. (1988). Geriatric assessment: Methods for clinical decision making. JAMA, 259(16), 2450–2452.

Article  PubMed  CAS  Google Scholar 

Ma, L., Tang, Z., Chan, P., & Walston, J. D. (2019). Novel frailty screening questionnaire (FSQ) predicts 8-year mortality in older adults in China. The Journal of Frailty & Aging, 8, 33–38.

CAS  Google Scholar 

Wu, C., Geldhof, G. J., Xue, Q. L., Kim, D. H., Newman, A. B., & Odden, M. C. (2018). Development, construct validity, and predictive validity of a continuous frailty scale: Results from 2 large US Cohorts. American Journal of Epidemiology, 187(8), 1752–1762.

Article  PubMed