Capturing evolving definitions of 12 select rare CNS tumors: a timely report from CBTRUS and NCI-CONNECT

Ostrom QT, Price M, Neff C, Cioffi G, Waite KA, Kruchko C, Barnholtz-Sloan JS (2022) CBTRUS Statistical report: primary brain and other central nervous system tumors diagnosed in the United States in 2015–2019. Neuro Oncol 24:v1–v95. https://doi.org/10.1093/neuonc/noac202

Article  CAS  PubMed  PubMed Central  Google Scholar 

National Cancer Institute N-C NCI-CONNECT Rare Brain and Spine Tumor Network. https://www.cancer.gov/rare-brain-spine-tumor/

Truitt G, Gittleman H, Leece R, Ostrom QT, Kruchko C, Armstrong TS, Gilbert MR, Barnholtz-Sloan JS (2019) Partnership for defining the impact of 12 selected rare CNS tumors: a report from the CBTRUS and the NCI-CONNECT. J Neurooncol 144:53–63. https://doi.org/10.1007/s11060-019-03215-x

Article  PubMed  PubMed Central  Google Scholar 

Louis DN, Perry A, Wesseling P, Brat DJ, Cree IA, Figarella-Branger D, Hawkins C, Ng HK, Pfister SM, Reifenberger G, Soffietti R, von Deimling A, Ellison DW (2021) The 2021 WHO classification of tumors of the central nervous system: a summary. Neuro Oncol 23:1231–1251

Article  CAS  PubMed  PubMed Central  Google Scholar 

Central Brain Tumor Registry of the United States SEER*Stat Database (2022) CDC National program of cancer registries and NCI surveillance, epidemiology and end results incidence data, 2021 submission (2000–2019)

Iorgulescu JB, Sun C, Neff C, Cioffi G, Gutierrez C, Kruchko C, Ruhl J, Waite KA, Negoita S, Hofferkamp J, Tihan T, McLendon R, Brat DJ, Ostrom QT, Barnholtz-Sloan JS (2022) Molecular biomarker-defined brain tumors: Epidemiology, validity, and completeness in the United States. Neuro Oncol 24:1989–2000. https://doi.org/10.1093/neuonc/noac113

Article  CAS  PubMed  PubMed Central  Google Scholar 

Kruchko C, Gittleman H, Ruhl J, Hofferkamp J, Ward EM, Ostrom QT, Sherman RL, Jones SF, Barnholtz-Sloan JS, Wilson RJ (2019) Cancer collection efforts in the United States provide clinically relevant data on all primary brain and other CNS tumors. Neurooncol Pract 6:330–339. https://doi.org/10.1093/nop/npz029

Article  PubMed  PubMed Central  Google Scholar 

Surveillance Epidemiology and End Results (SEER) Program (2022) SEER*Stat software version 8.4.0. National cancer institute, DCCPS, Surveillance research program. www.seer.cancer.gov/seerstat.

Fay MP (1999) Approximate confidence intervals for rate ratios from directly standardized rates with sparse data. Commun Stat Theory Methods 28:2141–2160. https://doi.org/10.1080/03610929908832411

Article  Google Scholar 

Fay MP, Tiwari RC, Feuer EJ, Zhaohui Z (2006) Estimating average annual percent change for disease rates without assuming constant change. Biometrics 62:847–854

Article  PubMed  Google Scholar 

Joinpoint Regression Program, Version 5.0.2.0 (2023) Statistical methodology and applications branch, surveillance research program, national cancer institute. https://surveillance.cancer.gov/joinpoint/

Neff C, Zhang A, Price M, Barnholtz-Sloan J, Ostrom Q (2022) prevEst (version 2.0). https://github.com/ostrom-lab/prevEst

Surveillance Epidemiology and End Results (SEER) Program (2022) SEER*Stat database: incidence - SEER research plus data, 17 Registries, Nov 2021 Sub (2000–2019) linked To county attributes total U.S., 1969–2020 counties, National Cancer Institute, DCCPS, Surveillance research program, released April 2022, based on the November 2021 submission

U.S. Cancer Statistics Working Group (2022) NPCR Survival analytical database, November 2021 Submission, Diagnosis year 2001–2018

Greenfield JP, Castaneda Heredia A, George E, Kieran MW, Morales La Madrid A (2016) Gliomatosis cerebri: A consensus summary report from the First International Gliomatosis cerebri Group Meeting, March 26–27, 2015, Paris, France. Pediatr Blood Cancer 63:2072–2077. https://doi.org/10.1002/pbc.26169

Article  PubMed  Google Scholar 

Louis DN OH, Wiestler OD, Cavanee WK (ed) (2016) WHO Classification of tumours of the central nervous system. International agency for research on cancer, Lyon, France

Chan MY, Teo WY, Seow WT, Tan AM (2007) Epidemiology, management and treatment outcome of medulloblastoma in singapore. Ann Acad Med Singapore 36:314–318

Article  PubMed  Google Scholar 

Schreck KC, Ranjan S, Skorupan N, Bettegowda C, Eberhart CG, Ames HM, Holdhoff M (2019) Incidence and clinicopathologic features of H3 K27M mutations in adults with radiographically-determined midline gliomas. J Neurooncol 143:87–93

Article  CAS  PubMed  PubMed Central  Google Scholar 

Vitanza NA, Partap S (2016) Pediatric ependymoma. J Child Neurol 31:1354–1366. https://doi.org/10.1177/0883073815610428

Article  PubMed  Google Scholar 

Wu J, Armstrong TS, Gilbert MR (2016) Biology and management of ependymomas. Neuro Oncol 18:902–913. https://doi.org/10.1093/neuonc/now016

Article  CAS  PubMed  PubMed Central  Google Scholar 

Archer TC, Mahoney EL, Pomeroy SL (2017) Medulloblastoma: molecular classification-based personal therapeutics. Neurotherapeutics 14:265–273. https://doi.org/10.1007/s13311-017-0526-y

Article  CAS  PubMed  PubMed Central  Google Scholar 

Salloum R, Chen Y, Yasui Y, Packer R, Leisenring W, Wells E, King A, Howell R, Gibson TM, Krull KR, Robison LL, Oeffinger KC, Fouladi M, Armstrong GT (2019) Late morbidity and mortality among medulloblastoma survivors diagnosed across three decades: a report from the childhood cancer survivor study. J Clin Oncol 37:731–740

Article  PubMed  PubMed Central  Google Scholar 

Iorgulescu JB, Sun C, Neff C, Cioffi G, Gutierrez C, Kruchko C, Ruhl J, Waite K, Negoita S, Hofferkamp J, Tihan T, McLendon R, Brat DJ, Ostrom QT, Barnholtz-Sloan JS (2022) Molecular biomarker-defined brain tumors: epidemiology, validity, and completeness in the United States. Neuro Oncol. https://doi.org/10.1093/neuonc/noac113

Article  PubMed  PubMed Central  Google Scholar 

Shepard MJ, Haider AS, Prabhu SS, Sawaya R, DeMonte F, McCutcheon IE, Weinberg JS, Ferguson SD, Suki D, Fuller GN, Lang FF (2022) Long term outcomes following surgery for pineal region tumors. J Neurooncol 156:491–498. https://doi.org/10.1007/s11060-021-03919-z

Article  PubMed  Google Scholar 

Gonzalez Castro LN, Wesseling P (2020) The cIMPACT-NOW updates and their significance to current neuro-oncology practice. Neurooncol Pract 8:4–10. https://doi.org/10.1093/nop/npaa055

Article  PubMed  PubMed Central  Google Scholar 

Pinheiro PS, Morris CR, Liu L, Bungum TJ, Altekruse SF (2014) The impact of follow-up type and missed deaths on population-based cancer survival studies for hispanics and asians. JNCI Monographs 2014:210–217. https://doi.org/10.1093/jncimonographs/lgu016

Article  Google Scholar 

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