Promoting community engagement in spinal cord injury research: a case example

Carman KL, Dardess P, Maurer M, Sofaer S, Adams K, Bechtel C, et al. Patient and family engagement: a framework for understanding the elements and developing interventions and policies. Health Aff. 2013;32:223–31.

Article  Google Scholar 

Meissner P, Cottler LB, Eder MM, Michener JL. Engagement science: the core of dissemination, implementation, and translational research science. J Clin Transl Sci 2020;4:216–8.

Article  PubMed  PubMed Central  Google Scholar 

Key KD, Furr-Holden D, Lewis EY, Cunningham R, Zimmerman MA, Johnson-Lawrence V, et al. The continuum of community engagement in research: a roadmap for understanding and assessing progress. Prog Community Health Partnersh. 2019;13:427–34.

Article  PubMed  Google Scholar 

Center for Drug Evaluation and Research; Center for Biologics Evaluation and Research (US). Patient-focused drug development: collecting comprehensive and representative input—guidance for industry, food and drug administration staff, and other stakeholders. Silver Spring (MD): Center for Drug Evaluation and Research (US); 2020, p. 34. Report No. FDA-2018-D-1893.

Andrews D, Fong G, Li L, Mathews M, Russell D, Angus D, et al. Guide to knowledge translation planning at CIHR: integrated and end-of-grant approaches. Canadian Institutes of Health Research; 2012. p. 34. https://cihr-irsc.gc.ca/e/45321.html.

Department of Defense Congressionally Directed Medical Research Programs (US). Spinal cord injury. 2022. https://cdmrp.health.mil/scirp/default.

Patient-Centered Outcomes Research Institute. The patient-centered outcomes research institute strategic plan: Generating evidence to achieve more efficient, effective, and equitable health care and improve health for all. Washington (DC): Patient-Centered Outcomes Research Institute; 10 p. (2022).

Morse LR, Field-Fote EC, Contreras-Vidal J, Noble-Haeusslein LJ, Rodreick M, Shields RK, et al. Meeting proceedings for SCI 2020: launching a decade of disruption in spinal cord injury research. J Neurotrauma. 2021;38:1251–66.

Article  PubMed  Google Scholar 

Advisory Committee to the Director Working Group on Diversity Subgroup on Individuals with Disabilities. National Institutes of Health. 2022. https://acd.od.nih.gov/documents/presentations/12092022_WGD_Disabilities_Subgroup_Report.pdf.

North American Spinal Cord Injury Consortium. North American spinal cord injury consortium charter 4.0. 4th ed. North American Spinal Cord Injury Consortium; 2021, p. 11. https://nasciconsortium.org/about-us/charter/.

Gainforth HL, Hoekstra F, McKay R, McBride CB, Sweet SN, Martin Ginis KA, et al. Integrated knowledge translation guiding principles for conducting and disseminating spinal cord injury research in partnership. Arch Phys Med Rehabil. 2021;102:656–63.

Article  PubMed  Google Scholar 

Martínez J, Piersol CV, Holloway S, Terhorst L, Leland NE. Evaluating stakeholder engagement: stakeholder-centric instrumentation process (SCIP). West J Nurs Res. 2021;43:949–61.

Article  PubMed  PubMed Central  Google Scholar 

Biller OM, Biundo J, Mitchell ES-L, Ofori EB, Richardson B, Kim RY, et al. Engaging stakeholders as advisors on the design of a large-scale calibration study of the Spinal Cord Injury Movement Index (SCI-MI) item pools. Poster session presented at: The 61st International Spinal Cord Society Annual Scientific Meeting; 2022; 15-18: Vancouver, Canada.

North American Spinal Cord Injury Consortium. NASCIC research advocacy course. (2022). https://nasciconsortium.org/courses/nascic-community-engagement-program-cep/ (2022).

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