1. Hospice, UK . Facts and figures, https://www.hospiceuk.org/about-hospice-care/media-centre/facts-and-figures (2019, accessed 13 April 2020).
Google Scholar2. Arias-Casais, N, Garralda, E, Rhee, JY, et al. EAPC Atlas of palliative care in Europe 2019. Vilvoorde EAPC Press. https://dadun.unav.edu/handle/10171/56787 (2019, accessed 12 April 2020).
Google Scholar3. Burbeck, R, Low, J, Sampson, EL, et al. Volunteers in specialist palliative care: a survey of adult services in the United Kingdom. J Palliat Med 2014; 17(5): 568–574.
Google Scholar | Crossref | Medline | ISI4. Hill, RC, Dempster, M, Donnelly, M, et al. Improving the wellbeing of staff who work in palliative care settings: a systematic review of psychosocial interventions. Palliat Med 2016; 30(9): 825–833.
Google Scholar | SAGE Journals | ISI5. Kamau, C, Medisauskaite, A, Lopes, B. Orientations can avert psychosocial risks to palliative staff: orientations. Psychooncology 2014; 23(6): 716–718.
Google Scholar | Crossref | Medline6. Khamisa, N, Peltzer, K, Ilic, D, et al. Work related stress, burnout, job satisfaction and general health of nurses: a follow-up study. Int J Nurs Pract 2016; 22(6): 538–545.
Google Scholar | Crossref | Medline7. Trinkoff, AM, Zhou, Q, Storr, CL, et al. Workplace access, negative proscriptions, job strain, and substance use in registered nurses. Nurs Res 2000; 49(2): 83–90.
Google Scholar | Crossref | Medline | ISI8. Aiken, LH, Clarke, SP, Sloane, DM, et al. Hospital nurse staffing and patient mortality, nurse burnout, and job dissatisfaction | Nursing | JAMA | JAMA Network. https://jamanetwork.com/journals/jama/fullarticle/195438 (2002, accessed 2 December 2019).
Google Scholar9. Rushton, CH, Batcheller, J, Schroeder, K, et al. Burnout and resilience among nurses practicing in high-intensity settings. Am J Crit Care 2015; 24(5): 412–420.
Google Scholar | Crossref | Medline10. Puyat, JH, Leclerc, A, Song, A, et al. Exposure to deaths and dying and risks of burnout among long-term care staff: a cross-sectional survey. Palliat Med 2019; 33(6): 717–720.
Google Scholar | SAGE Journals | ISI11. Harris, C, Griffin, MT. Nursing on empty: compassion fatigue signs, symptoms, and system interventions. J Christ Nurs 2015; 32(2): 80–87.
Google Scholar | Crossref | Medline12. Melvin, CS . Historical review in understanding burnout, professional compassion fatigue, and secondary traumatic stress disorder from a hospice and palliative nursing perspective. J Hosp Palliat Nurs 2015; 17(1): 66–72.
Google Scholar13. Kase, SM, Waldman, ED, Weintraub, AS. A cross-sectional pilot study of compassion fatigue, burnout, and compassion satisfaction in pediatric palliative care providers in the United States. Palliat Support Care 2019; 17(3): 269–275.
Google Scholar | Crossref | Medline14. Kamal, AH, Bull, JH, Wolf, SP, Swetz, KM, Shanafelt, TD, Ast, K, Kavalieratos, D, Sinclair, CT, Abernethy, AP. Prevalence and Predictors of Burnout Among Hospice and Palliative Care Clinicians in the U.S. J Pain Symptom Manage. 2016 April; 51(4): 690-696. doi: 10.1016/j.jpainsymman.2015.10.020.
Google Scholar | Crossref | Medline | ISI15. Swetz, KM, Harrington, SE, Matsuyama, RK, et al. Strategies for avoiding burnout in hospice and palliative medicine: peer advice for physicians on achieving longevity and fulfillment. J Palliat Med 2009; 12(9): 773–777.
Google Scholar | Crossref | Medline | ISI16. Casiday, R, Kinsman, E, Fisher, C, et al. Volunteering and health: what impact does it really have. Volunt Engl 2008; 9(3): 1–3.
Google Scholar17. Coleman, H, Walshe, C. What are the emotional experiences of being a volunteer in palliative and end-of-life care settings? A systematic review and thematic synthesis. J Pain Symptom Manag 2021; 62: e232–e247.
Google Scholar | Crossref | Medline18. MacLeod, A, Skinner, MW, Low, E. Supporting hospice volunteers and caregivers through community-based participatory research. Health Soc Care Community 2012; 20(2): 190–198.
Google Scholar | Crossref | Medline | ISI19. Claxton-Oldfield, S, Banzen, Y. Personality characteristics of hospice palliative care volunteers: the ‘big five’ and empathy. Am J Hosp Palliat Med 2010; 27(6): 407–412.
Google Scholar | SAGE Journals | ISI20. Nissim, R, Emmerson, D, O’Neill, B, et al. Motivations, satisfaction, and fears of death and dying in residential hospice volunteers: a prospective longitudinal study. Am J Hosp Palliat Med 2016; 33(4): 335–339.
Google Scholar | SAGE Journals | ISI21. Planalp, S, Trost, M. Motivations of hospice volunteers. Am J Hosp Palliat Med 2009; 26(3): 188–192.
Google Scholar | SAGE Journals | ISI22. Candy, B, France, R, Low, J, et al. Does involving volunteers in the provision of palliative care make a difference to patient and family wellbeing? A systematic review of quantitative and qualitative evidence. Int J Nurs Stud 2015; 52(3): 756–768.
Google Scholar | Crossref | Medline23. Smith, JA . Beyond the divide between cognition and discourse: using interpretative phenomenological analysis in health psychology. Psychol Health 1996; 11(2): 261–271.
Google Scholar | Crossref | ISI24. Biggerstaff, D, Thompson, AR. Interpretative phenomenological analysis (IPA): a qualitative methodology of choice in healthcare research. Qual Res Psychol 2008; 5(3): 214–224.
Google Scholar | Crossref25. van Manen, M, van Manen, M. Doing phenomenological research and writing. Qual Health Res 2021; 31: 1069–1082. Doi: 10.1177/10497323211003058
Google Scholar | SAGE Journals | ISI26. Smith, JA, Eatough, V. Interpretative phenomenological analysis. In: Lyons, DE, Coyle, A (eds) Analysing qualitative data in psychology. London: SAGE, 2007, pp.35–50.
Google Scholar | Crossref27. Hospice, UK . What is hospice care | About hospice care. https://www.hospiceuk.org/about-hospice-care/what-is-hospice-care (accessed March 5 2021).
Google Scholar28. Smith, J, Flowers, P, Larkin, M. Interpretative phenomenological analysis: theory, method and research. London: SAGE, 2009.
Google Scholar29. Smith, JA . Qualitative psychology: a practical guide to research methods. London: SAGE, 2015.
Google Scholar30. Pietkiewicz, I, Smith, JA. Praktyczny przewodnik interpretacyjnej analizy fenomenologicznej w badaniach jakościowych w psychologii. Czas Psychol 2012; 18(2): 361–369.
Google Scholar31. Richards, L . Using NVIVO in qualitative research. London: SAGE, 1999. pp.246.
Google Scholar32. Dein, S, Abbas, SQ. The stresses of volunteering in a hospice: a qualitative study. Palliat Med 2005; 19(1): 58–64.
Google Scholar | SAGE Journals | ISI33. Söderhamn, U, Flateland, S, Fensli, M, et al. To be a trained and supported volunteer in palliative care: a phenomenological study. BMC Palliat Care 2017; 16(1): 18.
Google Scholar | Crossref | Medline34. Brown, MV . How they cope: a qualitative study of the coping skills of hospice volunteers. Am J Hosp Palliat Med 2011; 28(6): 398–402.
Google Scholar | SAGE Journals | ISI35. Azuero, CB, Harris, GM, Allen, RS, et al. Team-based volunteerism with the seriously ill: a qualitative analysis from 10 volunteers’ perspectives. J Soc Work End Life Palliat Care 2014; 10(3): 282–295.
Google Scholar | Crossref | Medline36. Elliott, G, Umeh, K. Psychological issues in voluntary hospice care. Br J Nurs 2013; 22(7): 377–383.
Google Scholar | Crossref | Medline37. Claxton-Oldfield, S, Claxton-Oldfield, J. The impact of volunteering in hospice palliative care. Am J Hosp Palliat Med 2007; 24(4): 259–263.
Google Scholar | SAGE Journals38. Wilson, DM, Justice, C, Thomas, R, et al. End-of-life care volunteers: a systematic review of the literature. Health Serv Manage Res 2005; 18(4): 244–257.
Google Scholar | SAGE Journals39. Muckaden, MA, Pandya, SS. Motivation of volunteers to work in palliative care setting: a qualitative study. Indian J Palliat Care 2016; 22(3): 348–353.
Google Scholar | Crossref | Medline40. Beasley, E, Brooker, J, Warren, N, et al. The lived experience of volunteering in a palliative care biography service. Palliat Support Care 2015; 13(5): 1417–1425.
Google Scholar | Crossref | Medline41. Tait, GR, Hodges, BD. Residents learning from a narrative experience with dying patients: a qualitative study. Adv Health Sci Educ 2013; 18(4): 727–743.
Google Scholar | Crossref | Medline | ISI42. Tabassum, F, Mohan, J, Smith, P. Association of volunteering with mental well-being: a lifecourse analysis of a national population-based longitudinal study in the UK. BMJ Open 2016; 6(8): e011327.
Google Scholar | Crossref | Medline43. LeBlanc, RG . Reciprocity in caregiving relationships: contexts in later life. Int J Hum Caring 2017; 21(3): 151–158.
Google Scholar | Crossref44. Burbeck, R, Candy, B, Low, J, et al. Understanding the role of the volunteer in specialist palliative care: a systematic review and thematic synthesis of qualitative studies. BMC Palliat Care 2014; 13(1): 3.
Google Scholar | Crossref | Medline45. Palacio, G C, Krikorian, A, Gómez-Romero, MJ, Limonero, JT. Resilience in Caregivers: A Systematic Review. Am J Hosp Palliat Care. 2020 Aug;37(8):648-658. doi: 10.1177/1049909119893977.
Google Scholar | SAGE Journals