Service change and innovation in community end-of-life care during the COVID-19 pandemic: Qualitative analysis of a nationwide primary care survey

1. Park, S, Abrams, R. Alma-Ata 40th birthday celebrations and the Astana Declaration on Primary Health Care 2018. Br J Gen Pract 2019; 69(682): 220–221.
Google Scholar | Crossref | Medline2. World Health Organization . Why palliative care is an essential function of primary health care, https://www.who.int/publications-detail-redirect/WHO-HIS-SDS-2018.39 (2018) (accessed 16 June 2021).
Google Scholar3. Mitchell, S, Loew, J, Millington-Sanders, C, et al. Providing end-of-life care in general practice: findings of a national GP questionnaire survey. Br J Gen Pract 2016; 66(650): e647–e653.
Google Scholar | Crossref | Medline4. Mahmood-Yousuf, K, Munday, D, King, N, et al. Interprofessional relationships and communication in primary palliative care: impact of the Gold Standards Framework. Br J Gen Pract 2008; 58(549): 256–263.
Google Scholar | Crossref | Medline5. Burt, J, Shipman, C, White, P, et al. Roles, service knowledge and priorities in the provision of palliative care: a postal survey of London GPs. Palliat Med 2006; 20(5): 487–492.
Google Scholar | SAGE Journals | ISI6. Gardiner, C, Gott, M, Ingleton, C. Factors supporting good partnership working between generalist and specialist palliative care services: a systematic review. Br J Gen Pract 2012; 62(598): e353–e362.
Google Scholar | Crossref | Medline | ISI7. Office for National Statistics . Coronavirus (COVID-19): latest data and analysis on coronavirus (COVID-19) in the UK and its effect on the economy and society, https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/conditionsanddiseases (2020) (accessed 16 June 2021).
Google Scholar8. Graham, NS, Junghans, C, Downes, R, et al. SARS-CoV-2 infection, clinical features and outcome of COVID-19 in United Kingdom nursing homes. medRxiv. 2020:2020.05.19.20105460.
Google Scholar9. Bone, AE, Finucane, AM, Leniz, J, et al. Changing patterns of mortality during the COVID-19 pandemic: population-based modelling to understand palliative care implications. Palliat Med 2020; 34(9): 1193–1201.
Google Scholar | SAGE Journals | ISI10. Patel, MS, Phillips, CB, Pearce, C, et al. General practice and pandemic influenza: a framework for planning and comparison of plans in five countries. PLoS One 2008; 3(5): e2269.
Google Scholar | Crossref | Medline11. Mitchell, S, Maynard, V, Lyons, V, et al. The role and response of primary healthcare services in the delivery of palliative care in epidemics and pandemics: a rapid review to inform practice and service delivery during the COVID-19 pandemic. Palliat Med 34(9):1182–1192.
Google Scholar | SAGE Journals12. Dunleavy, L, Preston, N, Bajwah, S, et al. ‘Necessity is the mother of invention’: specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall). Palliat Med 2021; 35(5): 814–829.
Google Scholar | SAGE Journals | ISI13. Mitchell, S, Oliver, P, Gardiner, C, et al. Community end-of-life care during COVID-19: findings of a UK primary care survey. BJGP Open 2021; 5(4): BJGPO.2021.0095.
Google Scholar | Crossref | Medline14. Johnson, H, Brighton, LJ, Clark, J, et al. Experiences, concerns, and priorities for palliative care research during the COVID-19 pandemic: a rapid virtual stakeholder consultation with people affected by serious illness in England. King’s College London, London, 2020. https://doi.org/10.18742/pub01-034
Google Scholar15. von Elm, E, Altman, DG, Egger, M, et al. The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) statement: guidelines for reporting observational studies. J Clin Epidemiol 2008; 61(4): 344–349.
Google Scholar | Crossref | Medline | ISI16. Higginson, I, Murtagh, F, Preston, N, et al. CovPall Study. Improving palliative care for people affected by the COVID-19 pandemic by sharing learning – the national and international response, https://www.kcl.ac.uk/cicelysaunders/research/evaluating/covpall-study (2020) (accessed 16 June 2021).
Google Scholar17. Cummings, S, Bridgman, T, Brown, KG. Unfreezing change as three steps: rethinking Kurt Lewin’s legacy for change management. Human Relat 2016; 69(1): 33–60.
Google Scholar | SAGE Journals | ISI18. Braun, V, Clarke, V. Using thematic analysis in psychology. Qual Res Psych 2006; 3(2): 77–101.
Google Scholar | Crossref19. Burnard, P, Gill, P, Stewart, K, et al. Analysing and presenting qualitative data. Br Dent J 2008; 204(8): 429–432.
Google Scholar | Crossref | Medline | ISI20. Hospice UK: Project ECHO . https://www.hospiceuk.org/what-we-offer/clinical-and-care-support/project-echo (accessed 16 June 2021).
Google Scholar21. Office for National Statistics . Deaths in private homes, England and Wales (provisional): deaths registered from 28 December 2019 to 11 September 2020, https://www.ons.gov.uk/releases/deathsinprivatehomesenglandandwales (2020) (accessed 16 June 2021).
Google Scholar22. National Records Scotland . Monthly data on births and deaths registered in Scotland. https://www.nrscotland.gov.uk/statistics-and-data/statistics/statistics-by-theme/vital-events/general-publications/weekly-and-monthly-data-on-births-and-deaths/monthly-data-on-births-and-deaths-registered-in-scotland (2021) (accessed 16 June 2021).
Google Scholar23. Northern Ireland Statistics and Research Agency . Monthly deaths, https://www.nisra.gov.uk/publications/monthly-deaths (accessed 16 June 2021).
Google Scholar24. Arora, A . Life after COVID-19: a better normal? Persp Public Health 2020; 140(6): 311–312.
Google Scholar | SAGE Journals | ISI25. NHS . The NHS long term plan, https://www.longtermplan.nhs.uk/ (2019) (accessed 16 June 2021).
Google Scholar26. Petrova, M, Riley, J, Abel, J, et al. Crash course in EPaCCS (Electronic Palliative Care Coordination Systems): 8 years of successes and failures in patient data sharing to learn from. BMJ Supp Palliat Care 2018; 8(4): 447–455.
Google Scholar | Crossref | Medline27. NHS England . Emergency preparedness, resilience and response (EPRR), https://www.england.nhs.uk/ourwork/eprr/gf/ (2019) (accessed 16 June 2021).
Google Scholar28. NHS England . COVID-19 prioritisation within community health services. NHS England, 2020.
Google Scholar29. British Medical Association, Royal College of General Practitioners . COVID-19 work prioritisation unified guidance, 2021. https://www.bma.org.uk/media/4386/bma-rcgp-covid-workload-prioritisation-aug-2021.pdf (accessed 13 October 2021).
Google Scholar30. Marie Curie . Better end of life 2021. Dying, death and bereavement during COVID-19. Research report, https://www.mariecurie.org.uk/globalassets/media/documents/policy/policy-publications/2021/better-end-of-life-research-report.pdf (19 April 2021) (accessed 16 June 2021).
Google Scholar31. Hanna, JR, Rapa, E, Dalton, LJ, et al. Health and social care professionals’ experiences of providing end of life care during the COVID-19 pandemic: a qualitative study. Palliat Med 2021; 35(7): 1249–1257.
Google Scholar | SAGE Journals | ISI32. Knaul, F, Bhadelia, A, Atun, R, et al. Palliative care: an essential facet of universal health coverage. Lancet Global Health 2019; 7(11): e1488.
Google Scholar | Crossref | Medline

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