Ahn, JA, Lee, S (2018) The adaptation process of mothers raising a child with complex congenital heart disease. Journal of Child Health Care 22(4): 520–531.
Google Scholar |
SAGE Journals |
ISI Alegria, M, Atkins, M, Farmer, E, et al. (2010) One size does not fit all: taking diversity, culture and context seriously. Administration and Policy in Mental Health 37(1–2): 48–60.
Google Scholar |
Crossref |
Medline |
ISI Boat, TF, Filigno, S, Amin, RS (2017) Wellness for families of children with chronic health disorders. JAMA Pediatrics 171(9): 825–826.
Google Scholar |
Crossref |
Medline Brabham, DC (2013) Crowdsourcing. Cambridge, MA: MIT Press Essential Knowledge Series.
Google Scholar |
Crossref Braun, V, Clarke, V. (2006) Using thematic analysis in psychology. Qualitative Research in Psychology 3(2): 77–101.
Google Scholar |
Crossref Cooke, S, Smith, I, Turl, E, et al. (2012) Parent perspectives of clinical psychology access when experiencing distress. Community Practitioner: The Journal of the Community Practitioners' & Health Visitors' Association 85(4): 34–37.
Google Scholar |
Medline Cushing, CC, Fedele, DA, Brannon, EE, et al. (2018) Parents' perspectives on the theoretical domains framework elements needed in a pediatric health behavior app: a crowdsourced social validity study. JMIR mHealth and uHealth 6(12): e192.
Google Scholar |
Crossref |
Medline Dahlawi, N, Milnes, LJ, Swallow, V (2020) Behaviour and emotions of children and young people with congenital heart disease: A literature review. Journal of Child Health Care 24(2): 317–332.
Google Scholar |
SAGE Journals |
ISI DeMaso, DR, Labella, M, Taylor, GA, et al. (2014) Psychiatric disorders and function in adolescents with d-transposition of the great arteries. The Journal of Pediatrics 165(4): 760–766.
Google Scholar |
Crossref |
Medline Denniss, DL, Sholler, GF, Costa, DSJ, et al. (2019) Need for routine screening of health-related quality of life in families of young children with complex congenital heart disease. The Journal of Pediatrics 205: 21–28.
Google Scholar |
Crossref |
Medline Earls, MF, Yogman, MW, Mattson, G, et al. (2019) Committee on psychosocial aspects of child and family health Incorporating recognition and management of perinatal depression into pediatric practice. Pediatrics 143: e20183259.
Google Scholar |
Crossref |
Medline Edge, D (2011) 'It's leaflet, leaflet, leaflet then, "see you later": black Caribbean women's perceptions of perinatal mental health care. British Journal of General Practice 61(585): 256–262.
Google Scholar |
Crossref |
Medline Ernst, MM, Marino, BS, Cassedy, A, et al. (2018) Biopsychosocial predictors of quality of life outcomes in pediatric congenital heart disease. Pediatric Cardiology 39(1): 79–88.
Google Scholar |
Crossref |
Medline Fine, E, Reid, MC, Shengelia, R, et al. (2010) Directly observed patient-physician discussions in palliative and end-of-life care: A systematic review of the literature. Journal of Palliative Medicine 13(5): 595–603.
Google Scholar |
Crossref |
Medline |
ISI Gramszlo, C, Karpyn, A, Christofferson, J, et al. (2020) Supporting parenting during infant hospitalisation for CHD. Cardiology in the Young 30(10): 1422–1428.
Google Scholar |
Crossref |
Medline Habis, A, Tall, L, Smith, J, et al. (2007) Pediatric emergency medicine physicians' current practices and beliefs regarding mental health screening. Pediatric Emergency Care 23(6): 387–393.
Google Scholar |
Crossref |
Medline Hall, GCN, Ibaraki, AY, Huang, ER, et al. (2016) A meta-analysis of cultural adaptations of psychological interventions. Behavior Therapy 47(6): 993–1014.
Google Scholar |
Crossref |
Medline Hilton, LG, Azzam, T (2019) Crowdsourcing qualitative thematic analysis. American Journal of Evaluation 40: 575–589.
Google Scholar |
SAGE Journals |
ISI Hoffman, MF, Karpyn, A, Christofferson, J, et al. (2020) Fathers of children with congenital heart disease: sources of stress and opportunities for intervention. Pediatric Critical Care Medicine 21(11): e1002–e1009.
Google Scholar |
Crossref |
Medline Horwitz, SM, Kelleher, KJ, Stein, REK, et al. (2007) Barriers to the identification and management of psychosocial issues in children and maternal depression. Pediatrics 119: e208–e218.
Google Scholar |
Crossref |
Medline |
ISI Kasparian, NA, Kan, JM, Sood, E, et al. (2019) Mental health care for parents of babies with congenital heart disease during intensive care unit admission: systematic review and statement of best practice. Early Human Development 139: 104837.
Google Scholar |
Crossref |
Medline Kazak, AE, Hoagwood, K, Weisz, JR, et al. (2010) A meta-systems approach to evidence-based practice for children and adolescents. American Psychologist 65(2): 85–97.
Google Scholar |
Crossref |
Medline Long, KA, Goldish, M, Lown, EA, et al. (2015) Major lessons learned from a nationally-based community-academic partnership: addressing sibling adjustment to childhood cancer. Families, Systems, & Health 33(1): 61–67.
Google Scholar |
Crossref |
Medline Marino, BS, Lipkin, PH, Newburger, JW, et al. (2012) Neurodevelopmental outcomes in children with congenital heart disease: evaluation and management. Circulation 126(9): 1143–1172.
Google Scholar |
Crossref |
Medline |
ISI McCusker, CG, Armstrong, MP, Mullen, M, et al. (2013) A sibling-controlled, prospective study of outcomes at home and school in children with severe congenital heart disease. Cardiology in the Young 23(4): 507–516.
Google Scholar |
Crossref |
Medline Megnin-Viggars, O, Symington, I, Howard, LM, et al. (2015) Experience of care for mental health problems in the antenatal or postnatal period for women in the UK: a systematic review and meta-synthesis of qualitative research. Archives of Women's Mental Health 18(6): 745–759.
Google Scholar |
Crossref |
Medline Oster, ME, Lee, KA, Honein, MA, et al. (2013) Temporal trends in survival among infants with critical congenital heart defects. Pediatrics 131: e1502–e1508.
Google Scholar |
Crossref |
Medline |
ISI Palinkas, LA, Horwitz, SM, Green, CA, et al. (2015) Purposeful sampling for qualitative data collection and analysis in mixed method implementation research. Administration and Policy in Mental Health and Mental Health Services Research 42(5): 533–544.
Google Scholar |
Crossref |
Medline |
ISI Pickles, DM, Lihn, SL, Boat, TF, et al. (2020) A roadmap to emotional health for children and families with chronic pediatric conditions. Pediatrics 145: e20191324.
Google Scholar |
Crossref |
Medline Pierce, JS, Aroian, K, Caldwell, C, et al. (2017) The ups and downs of parenting young children with type 1 diabetes: a crowdsourcing study. Journal of Pediatric Psychology 42(8): 846–860.
Google Scholar |
Crossref |
Medline Slade, P, Morrell, CJ, Rigby, A, et al. (2010) Postnatal women's experiences of management of depressive symptoms: a qualitative study. British Journal of General Practice 60: e440–e448.
Google Scholar |
Crossref |
Medline Smith, TB, Rodríguez, MD, Bernal, G (2011) Culture. Journal of Clinical Psychology 67: 166–175.
Google Scholar |
Crossref |
Medline |
ISI Sood, E, Wysocki, T, Alderfer, MA, et al. (2021) Topical review: crowdsourcing as a novel approach to qualitative research. Journal of Pediatric Psychology 46(2): 189–196.
Google Scholar |
Crossref |
Medline Turner, KM, Chew-Graham, C, Folkes, L, et al. (2010) Women's experiences of health visitor delivered listening visits as a treatment for postnatal depression: a qualitative study. Patient Education and Counseling 78(2): 234–239.
Google Scholar |
Crossref |
Medline Utens, EMWJ, Callus, E, Levert, EM, et al. (2018) Multidisciplinary family-centred psychosocial care for patients with CHD: consensus recommendations from the AEPC psychosocial working group. Cardiology in the Young 28(2): 192–198.
Google Scholar |
Crossref |
Medline Valenzuela, JM, Smith, L (2016) Topical Review: Provider-patient interactions: an important consideration for racial/ethnic health disparities in youth. Journal of Pediatric Psychology 41(4): 473–480.
Google Scholar |
Crossref |
Medline van der Linde, D, Konings, EEM, Slager, MA, et al. (2011) Birth prevalence of congenital heart disease worldwide. Journal of the American College of Cardiology 58(21): 2241–2247.
Google Scholar |
Crossref |
Medline |
ISI Wissow, LS, van Ginneken, N, Chandna, J, et al. (2016) Integrating children's mental health into primary care. Pediatric Clinics of North America 63(1): 97–113.
Google Scholar |
Crossref |
Medline Whitney, DG, Peterson, MD (2019) US national and state-level prevalence of mental health disorders and disparities of mental health care use in children. JAMA Pediatrics 173(4): 389–391.
Google Scholar |
Crossref |
Medline Woolf-King, SE, Anger, A, Arnold, EA, et al. (2017) Mental health among parents of children with critical congenital heart defects: a systematic review. Journal of the American Heart Association 6: e004862.
Google Scholar |
Crossref |
Medline Wray, J, Brown, K, Tregay, J, et al. (2018) Parents' experiences of caring for their child at the time of discharge after cardiac surgery and during the postdischarge period: qualitative study using an online forum. Journal of Medical Internet Research 20(5): e155.
Google Scholar |
Crossref |
Medline
Comments (0)