1.
Hanna, JR, Rapa, E, Dalton, LJ, et al. A qualitative study of bereaved relatives’ end of life experiences during the COVID-19 pandemic. Palliat Med 2021; 35(5): 843–851.
Google Scholar |
SAGE Journals |
ISI2.
Mayland, CR, Hughes, R, Lane, S, et al. Are public health measures and individualised care compatible in the face of a pandemic? A national observational study of bereaved relatives’ experiences during the COVID-19 pandemic. Palliat Med. Epub ahead of print 31 May 2021. DOI:
10.1177/02692163211019885. Google Scholar |
Crossref3.
Pearce, C, Honey, JR, Lovick, R, et al. ‘A silent epidemic of grief’: a survey of bereavement care provision in the UK and Ireland during the COVID-19 pandemic. BMJ Open 2021; 11(3): e046872.
Google Scholar |
Crossref |
Medline4.
Yardley, S, Rolph, M. Death and dying during the pandemic. BMJ 2020; 369: m1472.
Google Scholar |
Crossref |
Medline5.
Harrop, E, Morgan, F, Byrne, A, et al. “It still haunts me whether we did the right thing”: a qualitative analysis of free text survey data on the bereavement experiences and support needs of family caregivers. BMC Palliat Care 2016; 15(1): 92.
Google Scholar |
Crossref |
Medline6.
Sanderson, C, Lobb, EA, Mowll, J, et al. Signs of post-traumatic stress disorder in caregivers following an expected death: a qualitative study. Palliat Med 2013; 27(7): 625–631.
Google Scholar |
SAGE Journals |
ISI7.
Dumont, I, Dumont, S, Mongeau, S. End-of-life care and the grieving process: family caregivers who have experienced the loss of a terminal-phase cancer patient. Qual Health Res 2008; 18(8): 1049–1061.
Google Scholar |
SAGE Journals |
ISI8.
Kentish-Barnes, N, Chaize, M, Seegers, V, et al. Complicated grief after death of a relative in the intensive care unit. Eur Respir J 2015; 45(5): 1341–1352.
Google Scholar |
Crossref |
Medline9.
Kun, P, Han, S, Chen, X, et al. Prevalence and risk factors for posttraumatic stress disorder: a cross-sectional study among survivors of the Wenchuan 2008 earthquake in China. Depress Anxiety 2009; 26(12): 1134–1140.
Google Scholar |
Crossref |
Medline10.
Kristensen, P, Weisæth, L, Heir, T. Bereavement and mental health after sudden and violent losses: a review. Psychiatr Interpers Biol Process 2012; 75(1): 76–97.
Google Scholar |
Crossref |
Medline |
ISI11.
Eisma, MC, Tamminga, A, Smid, GE, et al. Acute grief after deaths due to COVID-19, natural causes and unnatural causes: an empirical comparison. J Affect Disord 2021; 278: 54–56.
Google Scholar |
Crossref |
Medline12.
Eisma, MC, Boelen, PA, Lenferink, LIM. Prolonged grief disorder following the Coronavirus (COVID-19) pandemic. Psychiatry Res 2020; 288: 113031.
Google Scholar |
Crossref |
Medline13.
Aoun, S . Public health approaches to bereavement care – through the lens of the pandemic, at the second international research seminar on public health research in palliative care: key note presentation at towards solutions for global challenges, 17-18 November 2020. Published in Palliative Care and COVID-19: grief, bereavement and mental health,
https://palliativecare.org.au/palliative-care-and-covid-19-grief-bereavement-and-mental-health (2020, accessed 8 June 2021)
Google Scholar14.
Smith, KV, Wild, J, Ehlers, A. The masking of mourning: social disconnection after bereavement and its role in psychological distress. Clin Psychol Sci 2020; 8(3): 464–476.
Google Scholar |
SAGE Journals |
ISI15.
National Institute for Clinical Excellence (NICE) . Guidance on cancer services: improving supportive and palliative care for adults with cancer. The manual. London: National Institute for Clinical Excellence, 2004.
Google Scholar16.
Harrop, E, Mann, M, Semedo, L, et al. What elements of a systems’ approach to bereavement are most effective in times of mass bereavement? A narrative systematic review with lessons for COVID-19. Palliat Med 2020; 34(9): 1165–1181.
Google Scholar |
SAGE Journals |
ISI17.
Aoun, SM, Breen, LJ, O’Connor, M, et al. A public health approach to bereavement support services in palliative care. Aust N Z J Public Health 2012; 36: 14–16.
Google Scholar |
Crossref |
Medline |
ISI18.
Aoun, SM, Breen, LJ, Howting, DA, et al. Who needs bereavement support? A population based survey of bereavement risk and support need. PLoS One 2015; 10(3): e0121101.
Google Scholar |
Crossref |
Medline19.
Harrop, E, Morgan, F, Longo, M, et al. The impacts and effectiveness of support for people bereaved through advanced illness: a systematic review and thematic synthesis. Palliat Med 2020; 34(7): 871–888.
Google Scholar |
SAGE Journals |
ISI20.
Aoun, SM, Keegan, O, Roberts, A, et al. The impact of bereavement support on wellbeing: a comparative study between Australia and Ireland. Palliat Care Soc Pract 2020; 14: 2632352420935132.
Google Scholar |
Medline21.
Aoun, SM, Breen, LJ, White, I, et al. What sources of bereavement support are perceived helpful by bereaved people and why? Empirical evidence for the compassionate communities approach. Palliat Med 2018; 32: 1378–1388.
Google Scholar |
SAGE Journals |
ISI22.
Breen, LJ, O’Connor, M. Family and social networks after bereavement: experiences of support, change, and isolation. J Fam Ther 2011; 33: 98–120.
Google Scholar |
Crossref |
ISI23.
Breen, LJ, Aoun, SM, Rumbold, B, et al. Building community capacity in bereavement support: lessons learnt from bereaved former caregivers. Am J Hosp Palliat Med 2017; 34: 275–281.
Google Scholar |
SAGE Journals |
ISI24.
Harrop, E, Scott, H, Sivell, S, et al. Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care. BMC Palliat Care 2020; 19(1): 29–35.
Google Scholar |
Crossref |
Medline25.
National Bereavement Alliance . Covid 19: the response of voluntary sector bereavement services,
https://nationalbereavementalliance.org.uk/ourpublications/covid-19-the-response-of-voluntary-sector-bereavement-services (2020, accessed 8 June 2021).
Google Scholar26.
Sue Ryder . Bereaved people claim lockdown deaths became just a statistic,
https://www.sueryder.org/news/bereaved-people-claim-lockdown-deaths-became-just-a-statistic (2020, accessed 8 June 2021).
Google Scholar27.
Sue Ryder . A better grief report. London: Sue Ryder.
https://www.sueryder.org/sites/default/files/2019-03/a-better-grief-report-sue-ryder.pdf (2019, accessed 8 June 2021).
Google Scholar28.
Ochieng, C, Harrop, E, Nelson, A, et al. A scoping survey of bereavement services in Wales,
https://gov.wales/sites/default/files/publications/2019-12/scoping-survey-of-bereavement-services-in-wales-report.pdf (2019, accessed 24 August 2021).
Google Scholar29.
Wakefield, D, Fleming, E, Howorth, K, et al. Inequalities in awareness and availability of bereavement services in north-east England. BMJ Support Palliat Care. Epub ahead of print 23 September 2020. DOI:
10.1136/bmjspcare-2020-00242. Google Scholar |
Crossref30.
Mayland, CR, Powell, RA, Clarke, GC, et al. Bereavement care for ethnic minority communities: a systematic review of access to, models of, outcomes from, and satisfaction with, service provision. PLoS One 2021; 16: e0252188.
Google Scholar |
Crossref |
Medline31.
Murray, K . National-Mapping-of-BAME-Mental-Health-Services.pdf, bamestream.org.uk (2020, accessed 8 June 2020).
Google Scholar32.
Eysenbach, G . Improving the quality of web surveys: the checklist for reporting results of internet E-surveys (CHERRIES). J Med Internet Res 2004; 6(3): e34.
Google Scholar |
Crossref |
Medline |
ISI33.
Claessen, SJ, Francke, AL, Sixma, HJ, et al. Measuring relatives’ perspectives on the quality of palliative care: the consumer quality index palliative care. J Pain Symptom Manag 2013; 45(5): 875–884.
Google Scholar |
Crossref |
Medline |
ISI34.
Sim, J, Machin, L, Bartlam, B. Identifying vulnerability in grief: psychometric properties of the adult attitude to grief scale. Qual Life Res 2014; 23(4): 1211–1220.
Google Scholar |
Crossref |
Medline35.
Braun, V, Clarke, V. Using thematic analysis in psychology. Qual Res Psychol 2006; 3(2): 77–101.
Google Scholar |
Crossref36.
Selman, LE, Chamberlain, C, Sowden, R, et al. Sadness, despair and anger when a patient dies alone from COVID-19: a thematic content analysis of Twitter data from bereaved family members and friends. Palliat Med 2021; 35: 1267–1276.
Google Scholar |
SAGE Journals |
ISI37.
Mughal, F, Hossain, MZ, Brady, A, et al. Mental health support through primary care during and after covid-19. BMJ 2021; 373: n1064.
Google Scholar |
Crossref |
Medline38.
National Bereavement Alliance . Life after death,
https://nationalbereavementalliance.org.uk/ourpublications/life-after-death (2014, accessed 8 June 2021).
Google Scholar39.
CC-UK .
www.compassionate-communitiesuk.co.uk/ (accessed 8 June 2021).
Google Scholar40.
Breen, LJ, Kawashima, D, Joy, K, et al. Grief literacy: a call to action for compassionate communities. Death Stud 2020; 18: 1–9.
Google Scholar41.
Breen, LJ . Harnessing social support for bereavement now and beyond the COVID-19 pandemic. Palliat Care Soc Pract 2021; 15: 2632352420988009.
Google Scholar |
SAGE Journals42.
Islam, I, Nelson, A, Longo, M, et al. Before the 2020 pandemic: an observational study exploring public knowledge, attitudes, plans, and preferences towards death and end of life care in Wales. BMC Palliat Care 2021; 20: 116.
Google Scholar |
Crossref |
Medline
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