Allen, A. P., Curran, E. A., Duggan, A., Cryan, J. F., Chorcorain, A. N., Dinan, T. G., Molloy, D. W., Kearney, P. M., Clarke, G. (2017). A systematic review of the psychobiological burden of informal caregiving for patients with dementia: Focus on cognitive and biological markers of chronic stress. Neurosciences & Biobehavioral Reviews, 73, 123–164. https://doi.org/10.1016/j.neubiorev.2016.12.006
Google Scholar Alzheimer’s Association . (2021). 2021 Alzheimer’s disease facts and figures. Alzheimer’s & Dementia: The Journal of the Alzheimer’s Association, 17(3), 327–406. https://doi.org/10.1002/alz.12328
Google Scholar Brown, E. E., Kumar, S., Rajji, T. K., Pollock, B. G., Mulsant, B. H. (2020). Anticipating and mitigating the impact of the COVID-19 pandemic on Alzheimer’s disease and related dementias. The American Journal of Geriatric Psychiatry, 28(7), 712–721. https://doi.org/10.1016/j.jagp.2020.04.010
Google Scholar Cohen, G., Russo, M. J., Campos, J. A., Allegri, R. F. (2020). Living with dementia: Increased level of caregiver stress in times of COVID-19. International Psychogeriatrics, 32(11), 1377–1381. https://doi.org/10.1017/S1041610220001593
Google Scholar Elo, S., Kääriäinen, M., Kanste, O., Pölkki, T., Utriainen, K., Kyngäs, H. (2014). Qualitative content analysis: A focus on trustworthiness. SAGE Open, 4(1). https://doi.org/10.1177/2158244014522633
Google Scholar Gellert, P., Häusler, A., Gholami, M., Rapp, M., Kuhlmey, A., Nordheim, J. (2018). Own and partners’ dyadic coping and depressive symptoms in individuals with early-stage dementia and their caregiving partners. Aging & Mental Health, 22(8), 1014–1022. https://doi.org/10.1080/13607863.2017.1334759
Google Scholar Giebel, C., Cannon, J., Hanna, K., Butchard, S., Eley, R., Gaughan, A., Komuravelli, A., Shenton, J., Callaghan, S., Tetlow, H., Limbert, S., Whittington, R., Rogers, C., Rajagopal, M., Ward, K., Shaw, L., Corcoran, R., Bennett, K., Gabbay, M. (2020). Impact of COVID-19 related social support service closures on people with dementia and unpaid carers: A qualitative study. Aging & Mental Health, 25(7), 1281–1288. https://doi.org/10.1080/13607863.2020.1822292
Google Scholar Gitlin, L. N., Marx, K., Stanley, I. H., Hodgson, N. (2015). Translating evidence-based dementia caregiving interventions into practice: State-of-the-science and next steps. The Gerontologist, 55(2), 210–226. https://doi.org/10.1093/geront/gnu123
Google Scholar Glaser, B., Strauss, A. (1967). The discovery of grounded theory: Strategies for qualitative research. Aldine Publishing Company.
Google Scholar Hall, G., Buckwalter, K. (1987). Progressively lowered stress threshold: A conceptual model for care of adults with Alzheimer’s disease. Archives of Psychiatric Nursing, 1(6), 399–406.
Google Scholar | Medline Kales, H. C., Gitlin, L. N., Lyketsos, C. G. (2015). Assessment and management of behavioral and psychological symptoms of dementia. British Medical Journal, 350, h369. https://doi.org/10.1136/bmj.h369
Google Scholar Kershaw, T., Ellis, K. R., Yoon, H., Schafenacker, A., Katapodi, M., Northouse, L. (2015). The interdependence of advanced cancer patients’ and their family caregivers’ mental health, physical health, and self-efficacy over time. Annals of Behavioral Medicine, 49(6), 901–911. https://doi.org/10.1007/s12160-015-9743-y
Google Scholar Maust, D. T., Kim, H. M., Seyfried, L. S., Chiang, C., Kavanagh, J., Schneider, L. S., Kales, H. C. (2015). Antipsychotics, other psychotropics, and the risk of death in patients with dementia. JAMA Psychiatry, 72(5), 438–445. https://doi.org/10.1001/jamapsychiatry.2014.3018
Google Scholar Mays, N., Pope, C. (1995). Qualitative research: Rigour and qualitative research. BMJ, 311(6997), 109–112. https://doi.org/10.1136/bmj.311.6997.109
Google Scholar McShane, R. (2000). What are the syndromes of behavioral and psychological symptoms of dementia? International Psychogeriatrics, 12(S1), 147–153. https://doi.org/10.1017/S1041610200006943
Google Scholar Miller, L. M., Kaye, J. A., Lyons, K. S., Lee, C. S., Whitlatch, C. J., Caserta, M. S. (2019). Well-being in dementia: A cross-sectional dyadic study of the impact of multiple dimensions of strain on persons living with dementia and their family care partners. International Psychogeriatrics, 31(5), 617–626. https://doi.org/10.1017/S104161021800203X
Google Scholar National Institute on Aging . (2019). Alzheimer’s disease & related dementias. https://www.nia.nih.gov/health/alzheimers/basics
Google Scholar Orsulic-Jeras, S., Whitlatch, C. J., Szabo, S. M., Shelton, E. G., Johnson, J. (2019). The SHARE program for dementia: Implementation of an early-stage dyadic care-planning intervention. Dementia, 18(1), 360–379. https://doi.org/10.1177/1471301216673455
Google Scholar Reyes, A. M., Thunell, J., Zissimopoulos, J. (2021). Addressing the diverse needs of unpaid caregivers through new health-care policy opportunities. Public Policy & Aging Report, 31(1), 19–23. https://doi.org/10.1093/ppar/praa039
Google Scholar Schulz, R., Martire, L. M. (2004). Family caregiving of persons with dementia: Prevalence, health effects, and support strategies. The American Journal of Geriatric Psychiatry, 12(3), 240–249. https://doi.org/10.1097/00019442-200405000-00002
Google Scholar Scientific Software Development (Germany) . (1997). Scientific Software Development’s ATLAS.ti: The knowledge workbench: Short user’s manual.
Google Scholar Stall, N. M., Kim, S. J., Hardacre, K. A., Shah, P. S., Straus, S. E., Bronskill, S. E., Lix, L. M., Bell, C. M., Rochon, P. A. (2019). Association of informal caregiver distress with health outcomes of community-dwelling dementia care recipients: A systematic review. Journal of the American Geriatrics Society, 67(3), 609–617. https://doi.org/10.1111/jgs.15690
Google Scholar Strauss, A., Corbin, J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. SAGE Publications.
Google Scholar Streck, B. P., Wardell, D. W., LoBiondo-Wood, G., Beauchamp, J. E. S. (2020). Interdependence of physical and psychological morbidity among patients with cancer and family caregivers: Review of the literature. Psycho-Oncology, 29(6), 974–989. https://doi.org/10.1002/pon.5382
Google Scholar Tong, A., Sainsbury, P., Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042
Google Scholar