Dental Visits for Autistic Children: A Qualitative Focus Group Study of Parental Perceptions

Altiere, MJ, von Kluge, S. 2009. Searching for acceptance: challenges encountered while raising a child with autism. J Intellect Dev Disabil. 34(2):142–152.
Google Scholar | Crossref | Medline | ISI American Academy of Pediatric Dentistry . 2020. Behavior guidance for the pediatric dental patient. The Reference Manual of Pediatric Dentistry. Chicago (Ill): American Academy of Pediatric Dentistry. p. 292–310
Google Scholar American Psychiatric Association 2013. Diagnostic and Statistical Manual of Mental Disorders: DSM-5. 5th ed. Washington (DC): American Psychiatric Association.
Google Scholar | Crossref American Psychiatric Association . 1994. DSM-IV: Diagnostic and Statistical Manual of Mental Disorders. 4th ed. Washington (DC): American Psychiatric Association.
Google Scholar Anders, PL, Davis, EL. 2010. Oral health of patients with intellectual disailities: a systematic review. Spec Care Dentist. 30(3):110–117.
Google Scholar | Crossref | Medline Barry, S, O’Sullivan, E, Toumba, K. 2014. Barriers to dental care for children with autism spectrum disorder. Eur Arch Paediatr Dent. 15(2):127–134.
Google Scholar | Crossref | Medline Bishop, MR, Kenzer, AL, Coffman, CM, Tarbox, CM, Tarbox, J, Lanagan, TM. 2013. Using stimulus fading without escape extinction to increase compliance with toothbrushing in children with autism. Res Autism Spectr Disord. 7(6):680–686.
Google Scholar | Crossref Blomqvist, M, Dahllöf, G, Bejerot, S. 2014. Experiences of dental care and dental anxiety in adults with autism spectrum disorder. Autism Res Treat. 2014(2014):238764-9.
Google Scholar | Medline Braun, V, Clarke, V. 2006. Using thematic analysis in psychology. Qual Res Psychol. 3(2):77–101.
Google Scholar | Crossref Brown, J, Brown, J, Woodburn, J. 2014. Dental services for children with autism spectrum disorder. Learn Disabil Pract. 17(3):20–25.
Google Scholar | Crossref Cermak, SA, Curtin, C, Bandini, LG. 2010. Food selectivity and sensory sensitivity in children with autism spectrum disorders. J Am Diet Assoc. 110(2):238–246.
Google Scholar | Crossref | Medline Clarkson, PJ, Bogle, D, Dean, J, Tooley, M, Trewby, J, Vaughan, L, Adams, E, Dudgeon, P, Platt, N, Shelton, P. 2017. Engineering Better Care: A Systems Approach to Health and Care Design and Continuous Improvement. London: Royal Academy of Engineering.
Google Scholar Como, DH, Stein Duker, LI, Polido, JC, Cermak, SA. 2020. Oral health and autism spectrum disorders: a unique collaboration between dentistry and occupational therapy. Int J Environ Res Public Health. 18(1):135.
Google Scholar | Crossref Cost, KT, Zaidman-Zait, A, Mirenda, P, Duku, E, Zwaigenbaum, L, Smith, IM, Ungar, WJ, Kerns, C, Bennett, T, Szatmari, P. 2021. “Best things”: parents describe their children with autism spectrum disorder over time. J Autism Dev Disord. February 2, 2021. doi: 10.1007/s10803-021-04890-4. Online ahead of print.
Google Scholar | Crossref Du, RY, Yang, W, Lam, PPY, Yiu, CKY, McGrath, CP. 2021. Developing a toothbrushing visual pedagogy (tbvp) for preschool children with autism spectrum disorder. J Autism Dev Disord. March 10, 2021. doi: 10.1007/s10803-021-04946-5. Online ahead of print..
Google Scholar | Crossref | Medline Du, RY, Yiu, CK, King, NM. 2019. Oral health behaviours of preschool children with autism spectrum disorders and their barriers to dental care. J Autism Dev Disord. 49(2):453–459.
Google Scholar | Crossref | Medline Gabre, P, Martinsson, T, Gahnberg, L. 2001. Longitudinal study of dental caries, tooth mortality and interproximal bone loss in adults with intellectual disability. Eur J Oral Sci. 109(1):20–26.
Google Scholar | Crossref | Medline Lai, B, Milano, M, Roberts, MW, Hooper, SR. 2012. Unmet dental needs and barriers to dental care among children with autism spectrum disorders. J Autism Dev Disord. 42(7):1294–1303.
Google Scholar | Crossref | Medline Lewis, C, Vigo, L, Novak, L, Klein, EJ. 2015. Listening to parents: A qualitative look at the dental and oral care experiences of children with autism spectrum disorder. Pediatr Dent. 37(7):98E–104E.
Google Scholar | Medline Mac Giolla Phadraig, C, McCallion, P, Cleary, E, McGlinchey, E, Burke, E, McCarron, M, Nunn, J. 2015. Total tooth loss and complete denture use in older adults with intellectual disabilities in Ireland. J Public Health Dent. 75(2):101–108.
Google Scholar | Crossref | Medline Mac Giolla Phadraig, C, Nunn, J, McCallion, P, McCarron, M. 2018. Prevalence of edentulism among adults with intellectual disabilities: a narrative review informed by systematic review principles. Spec Care Dentist. 38(4):191–200.
Google Scholar | Crossref | Medline McMillion, A, Van Herwegen, J, Johnson, A, Monteiro, J, Cronin, AJ, Remington, A. 2021. Dental experiences of a group of autistic adults based in the united kingdom. Spec Care Dentist. 41(4):474–488.
Google Scholar | Crossref | Medline Mangione, F, Bdeoui, F, Monnier-Da Costa, A, Dursun, E. 2020. Autistic patients: a retrospective study on their dental needs and the behavioural approach. Clin Oral Investig. 24(5):1677–1685.
Google Scholar | Crossref | Medline Marshall, J, Sheller, B, Williams, BJ, Mancl, L, Cowan, C. 2007. Cooperation predictors for dental patients with autism. Pediatr Dent. 29(5):369–376.
Google Scholar | Medline Matson, JL, Kozlowski, AM. 2011. The increasing prevalence of autism spectrum disorders. Res Autism Spectr Disord 5(1):418–425.
Google Scholar | Crossref | ISI Nelson, T, Chim, A, Sheller, BL, McKinney, CM, Scott, JM. 2017. Predicting successful dental examinations for children with autism spectrum disorder in the context of a dental desensitization program. J Am Dent Assoc. 148(7):485–492.
Google Scholar | Crossref | Medline Neuendorf, KA . 2018. Content analysis and thematic analysis. In: Brough, P , editor. Advanced Research Methods for Applied Psychology: Design, Analysis and Reporting. Abingdon (UK): Routledge. p. 211–223.
Google Scholar | Crossref Parry, JA, Brosnan, S, Newton, JT, Linehan, C, Ryan, C. 2021. Brief report: analysis of dental treatment provided under general anaesthesia for children and young adults with autistic spectrum disorder and identification of challenges for dental services. J Autism Dev Disord. February 8, 2021. doi: 10.1007/s10803-021-04898-w. Online ahead of print.
Google Scholar | Crossref | Medline Parry, J, Shepherd, J. 2018. Understanding oral health challenges for children and young people with autistic spectrum conditions: views of families and the dental team.J Disabil Oral Health. 19(4):170–174.
Google Scholar Peres, M, Heilmann, A. 2015. Social Inequalities in Oral Health: From Evidence to Action. London: International Centre for Oral Health Inequalities Research & Policy.
Google Scholar Peres, MA, Macpherson, LM, Weyant, RJ, Daly, B, Venturelli, R, Mathur, MR, Listl, S, Celeste, RK, Guarnizo-Herreño, CC, Kearns, C. 2019. Oral diseases: a global public health challenge. Lancet. 394(10194):249–260.
Google Scholar | Crossref | Medline Pituch, KA, Green, VA, Didden, R, Lang, R, O’Reilly, MF, Lancioni, GE, Sigafoos, J. 2011. Parent reported treatment priorities for children with autism spectrum disorders. Res Autism Spectr Disord. 5(1):135–143.
Google Scholar | Crossref Pruitt, J, Adlin, T. 2010. The Persona Lifecycle: Keeping People in Mind throughout Product Design. Amsterdam: Elsevier Science & Technology.
Google Scholar Shapiro, M, Sgan-Cohen, HD, Parush, S, Melmed, RN. 2009. Influence of adapted environment on the anxiety of medically treated children with developmental disability. J Pediatr. 154(4):546–550.
Google Scholar | Crossref | Medline Spann, SJ, Kohler, FW, Soenksen, D. 2003. Examining parents’ involvement in and perceptions of special education services: an interview with families in a parent support group. Focus Autism Other Dev Disabl. 18(4):228–237.
Google Scholar | SAGE Journals Stein Duker, LI, Floríndez, LI, Como, DH, Tran, CF, Henwood, BF, Polido, JC, Cermak, SA. 2019. Strategies for success: a qualitative study of caregiver and dentist approaches to improving oral care for children with autism. Pediatr Dent. 41(1):4E–12E.
Google Scholar | Medline Stein, LI, Polido, JC, Mailloux, Z, Coleman, GG, Cermak, SA. 2011. Oral care and sensory sensitivities in children with autism spectrum disorders. Spec Care Dentist. 31(3):102–110.
Google Scholar | Crossref | Medline Thomas, N, Blake, S, Morris, C, Moles, DR. 2018. Autism and primary care dentistry: parents’ experiences of taking children with autism or working diagnosis of autism for dental examinations. Int J Paediatr Dent. 28(2):226–238.
Google Scholar | Crossref | Medline Watt, RG, Mathur, MR, Aida, J, Bönecker, M, Venturelli, R, Gansky, SA. 2018. Oral health disparities in children: a canary in the coalmine? Pediatr Clin North Am. 65(5):965–979.
Google Scholar | Crossref | Medline Weil, TN, Inglehart, MR. 2012. Three-to 21-year-old patients with autism spectrum disorders: parents’ perceptions of severity of symptoms, oral health, and oral health-related behavior. Pediatr Dent. 34(7):473–479.
Google Scholar | Medline

Comments (0)

No login
gif