What Is Known about Parents’ Treatment Decisions? A Narrative Review of Pediatric Decision Making.
Medical Decision Making. 32: 246-258https://doi.org/10.1177/0272989x11421528The promise of shared decision-making in paediatrics.
Acta Paediatrica (Oslo, Norway: 1992). 99: 1464van Wijk R.M. van Til J.A. Groothuis-Oudshoorn C.G. L’Hoir M.P. Boere-Boonekamp M.M. IJzerman M.J.Parents’ decision for helmet therapy in infants with skull deformation.
Child's nervous system. 30: 1225-1232Castagnetti M. El-Ghoneimi A.The influence of perioperative factors on primary severe hypospadias repair.
Nature Reviews Urology. 8: 198Bergman J.E. Loane M. Vrijheid M. et al.Epidemiology of hypospadias in Europe: a registry-based study.
World J Urol. 33: 2159-2167Nissen K.B. Udesen A. Garne E.Hypospadias: Prevalence, birthweight and associated major congenital anomalies.
Congenit Anom (Kyoto). 55 (): 37-41https://doi.org/10.1111/cga.12071Pierik F.H. Burdorf A. Nijman J.M.R. de Muinck Keizer-Schrama S.M.P.F. Juttmann R.E. Weber R.F.A.A high hypospadias rate in The Netherlands.
Human Reproduction. 17: 1112-1115https://doi.org/10.1093/humrep/17.4.1112Hypospadias: anatomy, etiology, and technique.
J Pediatr Surg. 41: 463-472https://doi.org/10.1016/j.jpedsurg.2005.11.059Catti M. Demède D. Valmalle A.-F. Mure P.-Y. Hameury F. Mouriquand P.Management of severe hypospadias.
Indian Journal of Urology : IJU : Journal of the Urological Society of India. 24: 233-240Djakovic N. Nyarangi-Dix J. O¨zturk A. Hohenfellner M.Hypospadias.
Advances in Urology. 2008: 650135https://doi.org/10.1155/2008/650135Congenitale afwijkingen aan de urethra; hypospadie/epispadie.
Bijblijven. 33: 610-625https://doi.org/10.1007/s12414-017-0274-2Carr M.M. Derr J.B. Karikari K.Decisional conflict and regret in parents whose children undergo tonsillectomy.
Otolaryngology–Head and Neck Surgery. 155: 863-868Hong P. Gorodzinsky A.Y. Taylor B.A. Chorney J.M.Parental decision making in pediatric otoplasty: the role of shared decision making in parental decisional conflict and decisional regret.
Laryngoscope. 126: S5Hong P. Maguire E. Purcell M. Ritchie K.C. Chorney J.Decision-making quality in parents considering adenotonsillectomy or tympanostomy tube insertion for their children.
JAMA Otolaryngology–Head & Neck Surgery. 143: 260-266Lorenzo A.J. Pippi Salle J.L. Zlateska B. Koyle M.A. Bagli D.J. Braga L.H.Decisional regret after distal hypospadias repair: single institution prospective analysis of factors associated with subsequent parental remorse or distress.
J Urol. 191: 1558-1563https://doi.org/10.1016/j.juro.2013.10.036Ghidini F. Sekulovic S. Castagnetti M.Parental Decisional Regret after Primary Distal Hypospadias Repair: Family and Surgery Variables, and Repair Outcomes.
J Urol. 195: 720-724https://doi.org/10.1016/j.juro.2015.10.118Lipstein E.A. Lovell D.J. Denson L.A. Kim S.C. Spencer C. Ittenbach R.F. et al.High levels of decisional conflict and de- cision regret when making decisions about biologics.
J Pediatr Gastroenterol Nutr. 63: e176Validation of a decisional conflict scale.
Medical Decision Making. 15: 25-30David, J. G., Lo, M. S., & Langer, D. A. (2017). Adolescent and Parent Perspectives on Medical Decision-Making for Chronic Illness.
O'connor A.M. Rostom A. Fiset V. Tetroe J. Entwistle V. Llewellyn-Thomas H. Jones J.Decision aids for patients facing health treatment or screening decisions: systematic review.
Bmj. 319: 731-734Chorney J. Haworth R. Graham M.E. Ritchie K. Curran J.A. Hong P.Understanding shared decision making in pediatric otolaryngology.
Otolaryngology-- Head and Neck Surgery. 152: 941-947Ritchie K.C. Chorney J. Hong P.Parents' decisional conflict, self-determination and emotional experiences in pediatric otolaryngology: A prospective descriptive– comparative study.
Int J Pediatr Otorhinolaryngol. 86: 114-117Chrzan R. Dik P. Klijn A.J. de Jong T.P.Quality assessment of hypospadias repair with emphasis on techniques used and experience of pediatric urologic surgeons.
Urology. 70: 148-152Manzoni G. Bracka A. Palminteri E. Marrocco G.Hypospadias surgery: when, what and by whom?.
BJU international. 94: 1188-1195Schultz J.R. Klykylo W.M. Wacksman J.Timing of elective hypospadias repair in children.
Pediatrics. 71: 342-351Szymanski, K. M., Whittam, B., Kaefer, M., Frady, H., Casey, J. T., Tran, V. T., . . . Rink, R. C. Parental decisional regret and views about optimal timing of female genital restoration surgery in congenital adrenal hyperplasia. Journal of Pediatric Urology. doi:10.1016/j.jpurol.2017.11.012
Carmack A. Notini L. Earp B.D.Should Surgery for Hypospadias Be Performed Before An Age of Consent?.
Journal of Sex Research. 53 (): 1047-1058https://doi.org/10.1080/00224499.2015.1066745Hickman Jr., R.L. Daly B.J. Lee E.Decisional conflict and regret: consequences of surrogate decision making for the chronically critically ill.
Applied nursing research. 25: 271-275Becerra Pérez M.,M. Menear M. Brehaut J.C. Légaré F.Extent and predictors of decision regret about health care decisions: a systematic review.
Medical Decision Making. 36: 777-790van Rooij I.A.L.M. van der Zanden L.F.M. Bongers E.M. et al.AGORA, a data‐and biobank for birth defects and childhood cancer.
Birth Defects Res A Clin Mol Teratol. 106: 675-684Brehaut J.C. O'Connor A.M. Wood T.J. Hack T.F. Siminoff L. Gordon E. Feldman- StewartValidation of a decision regret scale.
Medical Decision Making. 23: 281-292Brouwers M.M. Van Der Zanden L.F. De Gier R.P. Barten E.J. Zielhuis G.A. Feitz W.F. Roeleveld N.Hypospadias: risk factor patterns and different phenotypes.
BJU International. 105: 254-262https://doi.org/10.1111/j.1464-410X.2009.08772.xCurrent hypospadias management: Diagnosis, surgical management, and long-term patient-centred outcomes.
Can Urol Assoc J. 11: S48-s53https://doi.org/10.5489/cuaj.4386Weber D.M. Scho¨nbucher V.B. Landolt M.A. Gobet R.The Pediatric Penile Perception Score: An Instrument for Patient Self-Assessment and Surgeon Evaluation After Hypospadias Repair.
J Urol. 180: 1080-1084https://doi.org/10.1016/j.juro.2008.05.060The Strengths and Difficulties Questionnaire: a research note.
Journal of child psychology and psychiatry. 38: 581-586Pallant, J. (2013). SPSS survival manual: McGraw-Hill Education (UK).Perović, S. V., Basting, R. F., & Bloom, D. A. (1999). Atlas of congenital anomalies of the external genitalia: Refot-Arka.
The philosophical moment of the medical decision: revisiting emotions felt, to improve ethics of future decisions.
Journal of Medical Ethics. 33: 470-472https://doi.org/10.1136/jme.2006.016741Greco, M., & Stenner, P. (2008). Emotions: a social science reader: Routledge.
Evidence regarding cosmetic and medically unnecessary surgery on infants.
Journal of Pediatric Urology. 10: 2-6Butwicka A. Lichtenstein P. Landén M. Nordenvall A.S. Norderström A. Nordenskjöld A. Frisén L.Hypospadiacs and increased risk for neurodevelopmental disorders.
Journal of Child Psychology Psychiatry. 56: 155-161Vandendriessche S. Baeyens D. Van Hoecke E. Indekeu A. Hoebeke P.Body image and sexuality in adolescents after hypospadias surgery.
Journal of Pediatric Urology. 6: 54-59https://doi.org/10.1016/j.jpurol.2009.04.009Sandberg D.E. Meyer-Bahlburg H.F.L. Hensle T.W. Levitt S.B. Kogan S.J. Reda E.F.Psychosocial Adaptation of Middle Childhood Boys With Hypospadias After Genital Surgery.
Journal of Pediatric Psychology. 26: 465-475https://doi.org/10.1093/jpepsy/26.8.465Carr M.M. Printz J. Thakur S.Decisional regret following ventilation tube insertion.
Int J Pediatr Otorhinolaryngol. 99: 36-39https://doi.org/10.1016/j.ijporl.2017.05.014Meenakshi-Sundaram B. Coco C.T. Furr J.R. Dubow B.P. Aston C.E. Lewis J. Frimberger D.C.Analysis of Factors Associated with Patient or Caregiver Regret following Surgery for Fecal Incontinence.
J Urol. 199: 274-279https://doi.org/10.1016/j.juro.2017.07.040
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