Knowledge of genetics and attitudes toward genetic testing among university students in Indonesia

Abdelhalim H, Berber A, Lodi M et al (2022) Artificial Intelligence, Healthcare, Clinical Genomics, and Pharmacogenomics Approaches in Precision Medicine. Front Genet 13:1–12. https://doi.org/10.3389/fgene.2022.929736

Article  CAS  Google Scholar 

Ariani Y, Soeharso P, Sjarif DR (2017) Genetics and genomic medicine in Indonesia. Mol Genet Genomic Med 5:103–109. https://doi.org/10.1002/mgg3.284

Article  PubMed  PubMed Central  Google Scholar 

Bates BR, Templeton A, Achter PJ et al (2003) What Does “A Gene for Heart Disease” Mean? A Focus Group Study of Public Understandings of Genetic Risk Factors. Am J Med Genet 119A:156–161. https://doi.org/10.1002/ajmg.a.20113

Article  PubMed  Google Scholar 

Bergman MW, Goodson P, Goltz HH (2017) Exploring Genetic Numeracy Skills in a Sample of U.S. University Students. Front Public Heal 5:229. https://doi.org/10.3389/fpubh.2017.00229

Article  Google Scholar 

Berth H, Balck F, Dinkel A (2002) Attitudes toward genetic testing in patients at risk for HNPCC/FAP and the German population. Genet Test 6:273–280. https://doi.org/10.1089/10906570260471804

Article  PubMed  Google Scholar 

Bíró K, Dombrádi V, Jani A et al (2018) Creating a common language: defining individualized, personalized and precision prevention in public health. J Public Health (oxf) 40:e552–e559. https://doi.org/10.1093/pubmed/fdy066

Article  PubMed  Google Scholar 

Brand A, Brand H, Schulte in den Bäumen T, (2008) The impact of genetics and genomics on public health. Eur J Hum Genet 16:5–13. https://doi.org/10.1038/sj.ejhg.5201942

Article  PubMed  Google Scholar 

Calsbeek H, Morren M, Bensing J, Rijken M (2007) Knowledge and Attitudes Towards Genetic Testing: A Two Year Follow-Up Study in Patients with Asthma, Diabetes Mellitus and Cardiovascular Disease. J Genet Couns 16:493–504. https://doi.org/10.1007/s10897-006-9085-9

Article  PubMed  PubMed Central  Google Scholar 

Chapman R, Likhanov M, Selita F et al (2019) New literacy challenge for the twenty-first century: genetic knowledge is poor even among well educated. J Community Genet 10:73–84. https://doi.org/10.1007/s12687-018-0363-7

Article  PubMed  Google Scholar 

Chattopadhyay A (2005) Understanding of genetic information in higher secondary students in northeast India and the implications for genetics education. Cell Biol Educ 4:97–104. https://doi.org/10.1187/cbe.04-06-0042

Article  PubMed  PubMed Central  Google Scholar 

Cheung BY, Dar-Nimrod I, Gonsalkorale K (2014) Am I My Genes? Perceived Genetic Etiology, Intrapersonal Processes, and Health. Soc Personal Psychol Compass 8:626–637. https://doi.org/10.1111/spc3.12138

Article  Google Scholar 

Chin JJ, Tham HW (2020) Knowledge, Awareness, and Perception of Genetic Testing for Hereditary Disorders Among Malaysians in Klang Valley. Front Genet 11:512–582. https://doi.org/10.3389/fgene.2020.512582

Article  CAS  Google Scholar 

Christensen KD, Jayaratne TE, Roberts JS et al (2010) Understandings of Basic Genetics in the United States: Results from a National Survey of Black and White Men and Women. Public Health Genomics 13:467–476. https://doi.org/10.1159/000293287

Article  CAS  PubMed  PubMed Central  Google Scholar 

Claussnitzer M, Cho JH, Collins R et al (2020) A Brief History of Human Disease Genetics. Nature 577:179–189. https://doi.org/10.1038/s41586-019-1879-7

Article  CAS  PubMed  PubMed Central  Google Scholar 

Collins FS, McKusick VA (2001) Implications of the Human Genome Project for Medical Science. J Am Med Assoc 285:540–544. https://doi.org/10.1001/jama.285.5.540

Article  CAS  Google Scholar 

Dar-Nimrod I, Macnevin G, Godwin A et al (2019) Genetic Knowledge within a National Australian Sample: Comparisons with Other Diverse Populations. Public Health Genomics 21:133–143. https://doi.org/10.1159/000496381

Article  Google Scholar 

Davison C, Frankel S, Smith GD (1989) Inheriting heart trouble: The relevance of common-sense ideas to preventive measures. Health Educ Res 4:329–340. https://doi.org/10.1093/her/4.3.329

Article  Google Scholar 

Dougherty MJ, Lontok KS, Donigan K, McInerney JD (2014) The Critical Challenge of Educating the Public About Genetics. Curr Genet Med Rep 2:48–55. https://doi.org/10.1007/s40142-014-0037-7

Article  Google Scholar 

Durmaz AA, Karaca E, Demkow U, et al (2015) Evolution of genetic techniques: Past, present, and beyond. Biomed Res Int 2015 https://doi.org/10.1155/2015/461524

Etchegary H (2014) Public Attitudes Toward Genetic Risk Testing and Its Role in Healthcare. Per Med 11:509–522. https://doi.org/10.2217/pme.14.35

Article  CAS  PubMed  Google Scholar 

Etchegary H, Potter B, Howley H et al (2008) The Influence of Experiential Knowledge on Prenatal Screening and Testing Decisions. Genet Test 12:115–124. https://doi.org/10.1089/gte.2007.0057

Article  PubMed  Google Scholar 

Etchegary H, Cappelli M, Potter B et al (2009) Attitude and Knowledge about Genetics and Genetic Testing. Public Health Genomics 13:80–88. https://doi.org/10.1159/000220034

Article  PubMed  Google Scholar 

Eum H, Lee M, Yoon J et al (2018) Differences in Attitudes Toward Genetic Testing Among the Public, Patients, and Health-Care Professionals in Korea. Eur J Hum Genet 26:1432–1440. https://doi.org/10.1038/s41431-018-0191-6

Article  CAS  PubMed  PubMed Central  Google Scholar 

Evans G, Durant J (1995) The relationship between knowledge and attitudes in the public understanding of science in Britain. Public Underst Sci 4:57–74. https://doi.org/10.1088/0963-6625/4/1/004

Article  Google Scholar 

Faradz SM (2016) Cytogenetic analysis for research and services. J Med Sci 48:36–37. https://doi.org/10.19106/jmedsciesup004804201631

Article  Google Scholar 

Fitzgerald-Butt SM, Bodine A, Fry KM et al (2016) Measuring Genetic Knowledge: A Brief Survey Instrument for Adolescents and Adults. Clin Genet 89:235–243. https://doi.org/10.1111/cge.12618

Article  CAS  PubMed  Google Scholar 

Gaskell G, Allum N, Stares S (2003) Europeans and Biotechnology in 2002 - Eurobarometer 58.0: A report to the EC Directorate General for Research from the project ‘Life Sciences in European Society.’ European Commission, Brussel

Glenberg AM, Wilkinson AC, Epstein W (1982) The illusion of knowing: Failure in the self-assessment of comprehension. Mem Cognit 10:597–602. https://doi.org/10.3758/BF03202442

Article  Google Scholar 

Haga SB, Barry WT, Mills R et al (2013) Public Knowledge of and Attitudes Toward Genetics and Genetic Testing. Genet Test Mol Biomarkers 17:327–335. https://doi.org/10.1089/gtmb.2012.0350

Article  PubMed  PubMed Central  Google Scholar 

Harvey EK, Fogel CE, Peyrot M et al (2007) Providers’ knowledge of genetics: A survey of 5915 individuals and families with genetic conditions. Genet Med 9:259–267. https://doi.org/10.1097/GIM.0b013e31805002f2

Article  PubMed  Google Scholar 

Hauser D, Obeng AO, Fei K et al (2018) Views of Primary Care Providers on Testing Patients for Genetic Risks for Common Chronic Diseases. Health Aff (millwood) 37:793–800. https://doi.org/10.1377/hlthaff.2017.1548

Article  PubMed  Google Scholar 

Heine SJ, Dar-Nimrod I, Cheung BY, Proulx T (2017) Essentially Biased: Why People Are Fatalistic About Genes, 1st edn. Elsevier Inc.

Heine SJ (2017) DNA Is Not Destiny: The Remarkable, Completely Misunderstood Relationship between You and Your Genes. W.W. Norton and Company, New York

Google Scholar 

Henneman L, Timmermans DRM, Van Der Wal G (2003) Public Experiences, Knowledge and Expectations about Medical Genetics and the Use of Genetic Information. Community Genet 7:33–43. https://doi.org/10.1159/000080302

Article  Google Scholar 

Henneman L, Vermeulen E, Van El CG et al (2013) Public attitudes towards genetic testing revisited: Comparing opinions between 2002 and 2010. Eur J Hum Genet 21:793–799. https://doi.org/10.1038/ejhg.2012.271

Article  PubMed  Google Scholar 

Hood L, Rowen L (2013) The Human Genome Project: Big science transforms biology and medicine. Genome Med 5:1–8. https://doi.org/10.1186/gm483

Comments (0)

No login
gif