The Effects of Family Functioning on Gross Motor Function, Activity, and Participation in Children with Cerebral Palsy

1. Palisano RJ, Orlin M, Chiarello LA, et al. Determinants of intensity of participation in leisure and recreational activities by youth with cerebral palsy. Arch Phys Med Rehabil. 2011; 92(9): 1468-1476.
2. Orlin MN, Palisano RJ, Chiarello LA, et al. Participation in home, extracurricular, and community activities among children and young people with cerebral palsy. Dev Med Child Neurol. 2010; 52(2): 160-166.
3. Rosenbaum P, Paneth N, Leviton A, et al. A report: the definition and classification of cerebral palsy. Dev Med Child Neurol Suppl. 2007; 109: 8-14.
4. Kirby RS, Wingate MS, Van Naarden Braun K, et al. Prevalence and functioning of children with cerebral palsy in four areas of the United States in 2006: a report from the Autism and Developmental Disabilities Monitoring Network. Res Dev Disabil. 2011; 32(2): 462-469.
5. Bartlett DJ, Chiarello LA, McCoy SW, et al. The Move & PLAY study: an example of comprehensive rehabilitation outcomes research. Phys Ther. 2010; 90(11): 1660-1672.
6. Krysan, Maria, Kristin A. Moore, and Nicholas Zill. Identifying successful families: An overview of constructs and selected measures. Child Trends. 1990.
7. Landry SH, Smith KE, Swank PR. Responsive parenting: establishing early foundations for social, communication, and independent problem-solving skills. Dev Psychol. 2006; 42(4): 627-642.
8. Raina P, O'Donnell M, Rosenbaum P. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005; 115(6): e626-e636.
9. Lucena-Antón D, Rosety-Rodríguez I, Moral-Munoz JA. Effects of a hippotherapy intervention on muscle spasticity in children with cerebral palsy: A randomized controlled trial. Complement Ther Clin Pract. 2018; 31: 188-192.
10. Siriwat R, Deerojanawong J, Sritippayawan S, Hantragool S, Cheanprapai P. Mechanical Insufflation-Exsufflation Versus Conventional Chest Physiotherapy in Children With Cerebral Palsy. Respir Care. 2018; 63(2): 187-193.
11. Lin Y, Wang G, Wang B. Rehabilitation treatment of spastic cerebral palsy with radial extracorporeal shock wave therapy and rehabilitation therapy. Medicine (Baltimore). 2018; 97(51): e13828.
12. Ashwal S, Russman BS, Blasco PA. Practice parameter: diagnostic assessment of the child with cerebral palsy: report of the Quality Standards Subcommittee of the American Academy of Neurology and the Practice Committee of the Child Neurology Society. Neurology. 2004; 62: 851–63.
13. Hirsch G, Wagner B. The natural history of idiopathic toe-walking: a long term follow-up of fourteen conservatively treated children. Acta Paediatr. 2004; 93: 196–9.
14. Newman CJ, Ziegler AL, Jeannet PY, Roulet-Perez E, Deonna TW. Transient dystonic toe-walking: differentiation from cerebral palsy and a rare explanation for some unexplained cases of idiopathic toe-walking. Dev Med Child Neurol. 2006; 48(2): 96-102.
15. Segawa M. Hereditary progressive dystonia with marked diurnal fluctuation. Brain Dev. 2011; 33(3): 195-201.
16. Jan MM. Misdiagnoses in children with dopa-responsive dystonia. Pediatr Neurol. 2004; 31(4): 298-303.
17. Furukawa Y. GTP Cyclohydrolase 1-Deficient Dopa-Responsive Dystonia. In: Adam MP, Ardinger HH, Pagon RA, et al., eds. GeneReviews®. Seattle (WA): University of Washington, Seattle; 1993.
18. Hedera P. Hereditary Spastic Paraplegia Overview. In: Adam MP, Ardinger HH, Pagon RA, et al., eds. GeneReviews®. Seattle (WA): University of Washington, Seattle; 1993.
19. Finsterer J, Löscher W, Quasthoff S, Wanschitz J, Auer-Grumbach M, Stevanin G. Hereditary spastic paraplegias with autosomal dominant, recessive, X-linked, or maternal trait of inheritance. J Neurol Sci. 2012; 318(1-2): 1-18.
20. de Bot ST, van de Warrenburg BP, Kremer HP, Willemsen MA. Child neurology: hereditary spastic paraplegia in children. Neurology. 2010;75(19):e75-e79.
21. Singer MA, Statland JM, Wolfe GI, Barohn RJ. Primary lateral sclerosis. Muscle Nerve. 2007; 35(3): 291-302.
22. Lesca G, Eymard-Pierre E, Santorelli FM. Infantile ascending hereditary spastic paralysis (IAHSP): clinical features in 11 families. Neurology. 2003; 60(4): 674-682.
23. Rosenbaum PL, Walter SD, Hanna SE, Palisano RJ, Russell DJ, Raina P, Wood E, Bartlett DJ, Galuppi BE. Prognosis for motor function in cerebral palsy. Creation of motor development curves. JAMA. 2002; 288: 1357–1363
24. Palisano R, Rosenbaum P, Walter S, Russell D, Wood E, Galuppi B. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol. 1997; 39(4): 214-223.

25. Palisano R, Rosenbaum P, Bartlett D, Livingston M. The gross Motor Classification System for Cerebral Palsy–E&R. In: McDowell B. The Gross Motor Function Classification System – E&R. Dev Med Child Neurol. 2008; 50: 725.

26. International classification of functioning, disability and health: ICF. Geneva, World Health Organization 2001, pp 12-17.

27. Wood E, Rosenbaum P. The gross motor function classification system for cerebral palsy: a study of reliability and stability over time. Dev Med Child Neurol. 2000; 42: 292-296.

28. Palisano RJ, Rosenbaum P, Bartlett D, Livingston MH. Content validity of the expanded and revised Gross Motor Function Classification System. Dev Med Child Neurol. 2008; 50: 744-750.

29. Haley SM, Coster WJ, Ludlow LH, Haltiwanger JT, Andrelloos PJ. Pediatric Evaluation of Disability Inventory: Development, Standardization, and Administration Manual, Version 1.0. Boston, MA: New England Medical Center 1992.

30. Nichols DS, Case-Smith J. Reliability and Validity of the Pediatric Evaluation of Disability Inventory. Pediatric Physical Therapy. 1996; 8: 15-24.

31. Haley SM, Coster WJ, Faas RM. A content validity study of the Pediatric Evaluation of Disability Inventory. Pediatric Physical Therapy. 1991; 3: 177-184.

32. Feldman AB, Haley SM, Coryell J. Concurrent and construct validity of the Pediatric Evaluation of Disability Inventory. Phys Ther. 1990; 70(10): 602-610.

33. Wright FV, Boschen KA. The Pediatric Evaluation of Disability Inventory (PEDI): Validation of a new functional assessment outcome instrument. Canadian Journal of Rehabilitation. 1993; 7: 41-42.

34. McCarthy ML, Silberstein CE, Atkins EA, et al. Comparing reliability and validity of pediatric instruments for measuring health and well-being of children with spastic cerebral palsy. Dev Med Child Neurol. 2002; 44: 468-476.
35. Ferre CL, Brandão M, Surana B, Dew AP, Moreau NG, Gordon AM. Caregiver-directed home-based intensive bimanual training in young children with unilateral spastic cerebral palsy: a randomized trial. Dev Med Child Neurol. 2017;59(5):497-504.

36. Law M, Rosenbaum PL, King GA, et al. Family-Centred Service Fact Sheet #1. 2003. Available from:https://www.canchild.ca/system/tenon/assets/attachments/000/ 001/266/original/FCS1.pdf (accessed 25 April 2018).

37. Shevell M, Oskoui M, Wood E, et al. Family-centred health care for children with cerebral palsy. Dev Med Child Neurol. 2019; 61(1): 62-68.

38. King GA, King SM, Rosenbaum P. Interpersonal aspects of care-giving and client outcomes: a review of the literature. Ambul Child Health. 1996; 2: 151–60.

39. King G, King S, Rosenbaum P, Goffin R. Family-centered caregiving and well-being of parents of children with disabilities: linking process with outcome. J Pediatr Psychol. 1999; 24: 41–53.

40. King G, Law M, King S, Rosenbaum P. Parents’ and service providers’ perceptions of the family-centredness of children’s rehabilitation services. Phys Occup Ther Pediatr. 1998; 18: 21–40.
41. Beckung E, Hagberg G. Neuroimpairments, activity limitations, and participation restrictions in children with cerebral palsy. Dev Med Child Neurol. 2002; 44(5): 309-316.
42. Colver A, Rapp M, Eisemann N, et al. Self-reported quality of life of adolescents with cerebral palsy: a cross-sectional and longitudinal analysis. Lancet. 2015; 385(9969): 705-716.
43. Heah T, Case T, McGuire B, Law M. Successful participation: the lived experience among children with disabilities. Can J Occup Ther. 2007; 74(1): 38-47.
44. LaForme Fiss A, Chiarello LA, Bartlett D, et al. Family ecology of young children with cerebral palsy. Child Care Health Dev. 2014; 40(4): 562-571.

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