Hanno P, Dmochowski R. Status of international consensus on interstitial cystitis/bladder pain syndrome/painful bladder syndrome: 2008 snapshot. Neurourol Urodyn. 2009;28:274–86.

Article  PubMed  Google Scholar 

Bullones Rodríguez MÁ, Afari N, Buchwald DS, National Institute of Diabetes and Digestive and Kidney Diseases Working Group on Urological Chronic Pelvic Pain. Evidence for overlap between urological and nonurological unexplained clinical conditions. J Urol. 2013;189:S66–74.

PubMed  PubMed Central  Google Scholar 

Nickel JC, Tripp DA, Pontari M, et al. Interstitial cystitis/painful bladder syndrome and associated medical conditions with an emphasis on irritable bowel syndrome, fibromyalgia and chronic fatigue syndrome. J Urol. 2010;184:1358–63.

Article  PubMed  Google Scholar 

Kennedy BM, Rehman M, Johnson WD, Magee MB, Leonard R, Katzmarzyk PT. Healthcare providers versus patients’ understanding of health beliefs and values. Patient Exp J. 2017;4:29–37.

Article  PubMed  PubMed Central  Google Scholar 

Greenhalgh S. Under the medical gaze: facts and fictions of chronic pain. Berkeley: University of California Press; 2001.

Book  Google Scholar 

Kirkham A, Swainston K. Women’s experiences of interstitial cystitis/painful bladder syndrome. West J Nurs Res. 2022;44:125–32.

Article  PubMed  Google Scholar 

Gonzalez G, Vaculik K, Khalil C, et al. Experiences of women with interstitial cystitis/bladder pain syndrome: what can we learn from women’s online discussions? J Urol. 2022. https://doi.org/10.1097/JU.0000000000002955.

Article  PubMed  Google Scholar 

Sutcliffe S, Bradley CS, Clemens JQ, et al. Urological chronic pelvic pain syndrome flares and their impact: qualitative analysis in the MAPP network. Int Urogynecol J. 2015;26:1047–60.

Article  PubMed  PubMed Central  Google Scholar 

Kanter G, Volpe KA, Dunivan GC, et al. Important role of physicians in addressing psychological aspects of Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS): a qualitative analysis. Int Urogynecol J. 2017;28:249–56.

Article  PubMed  Google Scholar 

Windgassen SS, Sutherland S, Finn MTM, et al. Gender differences in the experience of interstitial cystitis/bladder pain syndrome. Front Pain Res (Lausanne). 2022;3:954967.

Article  PubMed  Google Scholar 

Wygant JN, McGuire LJ, Bush NM, Burnett TL, Green IC, Breitkopf DM. What makes a chronic pelvic pain patient satisfied? J Psychosom Obstet Gynaecol. 2019;40:239–42.

Article  PubMed  Google Scholar 

Lobo CP, Pfalzgraf AR, Giannetti V, Kanyongo G. Impact of invalidation and trust in physicians on health outcomes in fibromyalgia patients. Prim Care Companion CNS Disord. 2014;. https://doi.org/10.4088/PCC.14m01664.

Article  PubMed  PubMed Central  Google Scholar 

Toye F, Seers K, Barker K. A meta-ethnography of patients’ experiences of chronic pelvic pain: struggling to construct chronic pelvic pain as ‘real.’ J Adv Nurs. 2014;70:2713–27.

Article  PubMed  Google Scholar 

Pope C, Ziebland S, Mays N. Qualitative research in health care. Analysing qualitative data. BMJ. 2000;320:114–6.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Jackson J. “After a while no one believes you”: real and unreal pain. In: Pain as human experience: an anthropological perspective. Berkeley: University of California Press; 1994. p. 138–68.

Google Scholar 

Nickel JC, Tripp DA, Beiko D, et al. The interstitial cystitis/bladder pain syndrome clinical picture: a perspective from patient life experience. Urol Pract. 2018;5:286–92.

Article  PubMed  Google Scholar 

Mattingly C, Garro LC, editors. Narrative and the cultural construction of illness and healing. Berkeley: University of California Press; 2000.

Google Scholar 

Garro L. Chronic illness and the construction of narratives. In: Pain as human experience: an anthropological perspective. University of California Press, Berkeley ; 1992. p. 100–37.

Google Scholar 

Buchbinder M. All in your head: making sense of pediatric pain. Berkeley: University of California Press; 2015.

Book  Google Scholar 

Asbring P, Närvänen A-L. Ideal versus reality: physicians perspectives on patients with Chronic Fatigue Syndrome (CFS) and fibromyalgia. Soc Sci Med. 2003;57:711–20.

Article  PubMed  Google Scholar 

Crawford A, Muere A, Tripp DA, et al. The chicken or the egg: longitudinal changes in pain and catastrophizing in women with interstitial cystitis/bladder pain syndrome. Can Urol Assoc J. 2021;15:326–31.

Article  PubMed  PubMed Central  Google Scholar 

Sullivan MJL, Bishop SR, Pivik J. The pain catastrophizing scale: development and validation. Psychol Assess. 1995;7:524–32.

Article  Google Scholar 

McKernan LC, Bonnet KR, Finn MTM, et al. Qualitative analysis of treatment needs in interstitial cystitis/bladder pain syndrome: implications for intervention. Can J Pain. 2020;4:181–98.

Article  PubMed  PubMed Central  Google Scholar 

Hoffmann D, Tarzian A. The girl who cried pain: a bias against women in the treatment of pain. J Law Med Ethics. 2001;29:13–27.

Article  CAS  PubMed  Google Scholar 

D’Eon JL, Harris CA, Ellis JA. Testing factorial validity and gender invariance of the pain catastrophizing scale. J Behav Med. 2004;27:361–72.

Article  PubMed  Google Scholar