Zegers-Hochschild F, Adamson GD, De Mouzon J, Ishihara O, Mansour R, Nygren K, et al. The International Committee for Monitoring Assisted Reproductive Technology (ICMART) and the World Health Organization (WHO) revised glossary on ART terminology, 2009. Hum Reprod. 2009;24(11):2683–7.

Article  CAS  PubMed  Google Scholar 

Chachamovich JR, Chachamovich E, Ezer H, Fleck MP, Knauth D, Passos EP. Investigating quality of life and health-related quality of life in infertility: a systematic review. J Psychosom Obstet Gynaecol. 2010;31(2):101–10.

Article  PubMed  Google Scholar 

Ramezanzadeh F, Aghssa MM, Abedinia N, Zayeri F, Khanafshar N, Shariat M, et al. A survey of relationship between anxiety, depression and duration of infertility. BMC Womens Health [Internet]. 2004;4(1):9. https://doi.org/10.1186/1472-6874-4-9.

Article  PubMed  Google Scholar 

Rashidi B, Montazeri A, Ramezanzadeh F, Shariat M, Abedinia N, Ashrafi M. Health-related quality of life in infertile couples receiving IVF or ICSI treatment. BMC Health Serv Res. 2008;8:186. https://doi.org/10.1186/1472-6963-8-186.

Article  PubMed  PubMed Central  Google Scholar 

Karabulut A, Özkan S, Oğuz N. Predictors of fertility quality of life (FertiQoL) in infertile women: analysis of confounding factors. Eur J Obstet Gynecol Reprod Biol. 2013;170(1):193–7. https://doi.org/10.1016/j.ejogrb.2013.06.029.

Article  PubMed  Google Scholar 

Greil AL, Slauson-Blevins K, McQuillan J. The experience of infertility: a review of recent literature. Sociol Health Illn. 2010;32(1):140–62.

Article  PubMed  Google Scholar 

Abbey A, Halman LJ, Andrews FM. Psychosocial, treatment, and demographic predictors of the stress associated with infertility. Fertil Steril. 1992;57(1):122–8.

Article  CAS  PubMed  Google Scholar 

Mousavi SA, Masoumi SZ, Keramat A, Pooralajal J, Shobeiri F. Assessment of questionnaires measuring quality of life in infertile couples: a systematic review. J Reprod Infertil. 2013;14(3):110–9.

PubMed  PubMed Central  Google Scholar 

Cusatis R, Fergestrom N, Cooper A, Schoyer KD, Kruper A, Sandlow J, et al. Too much time? Time use and fertility-specific quality of life among men and women seeking specialty care for infertility. BMC Psychol. 2019;7(1):45.

Article  PubMed  PubMed Central  Google Scholar 

Whiteford LM, Gonzalez L. Stigma: the hidden burden of infertility. Soc Sci Med. 1995;40(1):27–36.

Article  CAS  PubMed  Google Scholar 

Geneva: World Health Organization. Infertility prevalence estimates, 1990–2021. 2023.

Boivin J, Bunting L, Collins JA, Nygren KG. International estimates of infertility prevalence and treatment-seeking: potential need and demand for infertility medical care. Hum Reprod [Internet]. 2007;22(6):1506–12. https://doi.org/10.1093/humrep/dem046.

Article  PubMed  Google Scholar 

NSFG - Listing I - Key Statistics from the National Survey of Family Growth. https://www.cdc.gov/nchs/nsfg/key_statistics/i.htm. Accessed 13 Aug 2023.

Cusatis R, Fergestrom N, Cooper A, Schoyer KD, Kruper A, Sandlow J, et al. Too much time? Time use and fertility-specific quality of life among men and women seeking specialty care for infertility. BMC Psychol. 2019;7(1):1–9. https://doi.org/10.1186/s40359-019-0312-1.

Article  Google Scholar 

Verhaak CM, Smeenk JMJ, van Minnen A, Kremer JAM, Kraaimaat FW. A longitudinal, prospective study on emotional adjustment before, during and after consecutive fertility treatment cycles. Hum Reprod. 2005;20(8):2253–60.

Article  CAS  PubMed  Google Scholar 

Olshansky EF. Infertility and its influence on women’s career identities. Health Care Women Int. 1987;8(2–3):185–96. https://doi.org/10.1080/07399338709515781.

Article  CAS  PubMed  Google Scholar 

Greil AL. Infertility and psychological distress: a critical review of the literature. Soc Sci Med. 1997;45(11):1679–704.

Article  CAS  PubMed  Google Scholar 

Duthie EA, Cooper A, Davis JB, Sandlow J, Schoyer KD, Strawn E, et al. Priorities for family building among patients and partners seeking treatment for infertility. Reprod Health. 2017;14(1):52.

Article  PubMed  PubMed Central  Google Scholar 

Anguzu Cusatis, R., Fergestrom N., Cooper A., Sandlow J., Schoyer K., Flynn K.E. R. Decision-making and decisional conflict among couples seeking treatment for infertility. Hum Reprod

Mesquita da Silva S, Place JM, Boivin J, Gameiro S. Failure after fertility treatment: regulation strategies when facing a blocked parenthood goal. Hum Fertil (Camb). 2020;23(3):179–85.

Article  PubMed  Google Scholar 

Johnson KM, Johnson DR. Partnered Decisions? U.S. Couples and Medical Help-seeking for Infertility. Fam Relat. 2009;58(4):431.

Article  PubMed  PubMed Central  Google Scholar 

Peddie VL, van Teijlingen E, Bhattacharya S. A qualitative study of women’s decision-making at the end of IVF treatment. Hum Reprod. 2005;20(7):1944–51.

Article  CAS  PubMed  Google Scholar 

Rajkhowa M, McConnell A, Thomas GE. Reasons for discontinuation of IVF treatment: a questionnaire study. Hum Reprod. 2005;21(2):358–63.

Article  PubMed  Google Scholar 

Verberg MFG, Eijkemans MJC, Heijnen E, Broekmans FJ, de Klerk C, Fauser B, et al. Why do couples drop-out from IVF treatment? A prospective cohort study. Hum Reprod. 2008;23(9):2050–5.

Article  CAS  PubMed  Google Scholar 

Copp T, Kvesic D, Lieberman D, Bateson D, McCaffery KJ. ‘Your hopes can run away with your realistic expectations’: a qualitative study of women and men’s decision-making when undergoing multiple cycles of IVF. Hum Reprod Open. 2020;2020(4):1–8. https://doi.org/10.1093/hropen/hoaa059.

Article  Google Scholar 

Lyerly AD, Nakagawa S, Kuppermann M. Decisional conflict and the disposition of frozen embryos: implications for informed consent. Hum Reprod. 2011;26(3):646–54.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Lyerly AD, Steinhauser K, Namey E, Tulsky JA, Cook-Deegan R, Sugarman J, et al. Factors that affect infertility patients’ decisions about disposition of frozen embryos. Fertil Steril. 2006;85(6):1623–30.

Article  PubMed  Google Scholar 

Svanberg AS, Boivin J, Bergh T. Factors influencing the decision to use or discard cryopreserved embryos. Acta Obstet Gynecol Scand. 2001;80(9):849–55.

Article  CAS  PubMed  Google Scholar 

Lyerly AD, Faden RR. Willingness to donate frozen embryos for stem cell research. Science. 2007;317(5834):46–7. https://doi.org/10.1126/science.1145067.

Article  PubMed  Google Scholar 

Insurance Coverage by State | RESOLVE: The National Infertility Association. https://resolve.org/learn/financial-resources-for-family-building/insurance-coverage/insurance-coverage-by-state/. Accessed 16 Aug 2023.

Becerra Pérez MM, Menear M, Brehaut JC, Légaré F. Extent and predictors of decision regret about health care decisions: a systematic review. Med Decis Making. 2016;36(6):777–90.

Article  PubMed  Google Scholar 

Gilovich A, Husted V, Bickford T, Blau K, Charlton A, Buckley T, et al. Psychological Review The Experience of Regret: What When, and Why Regrets of Action and Inaction What People Regret Most in Their Lives The Temporal Aspects of Regret Intuitions About the Short-Term and Long-Term Regrets of Others Recent and Life-Long Regrets Why Regrets Shift Systematically With Time Factors That Reduce the Pain of Regrettable Actions Factors That Bolster the Pain of Regrettable Inactions. Psychol Rev. 1995;102(2):379–95.

Article  CAS  PubMed  Google Scholar 

Connolly T, Reb J. Regret in cancer-related decisions. Health Psychol. 2005;24(4S):S29-34.

Article  PubMed  Google Scholar 

Greil AL, Lowry MH, Burch AR, Slauson-Blevins K, Park N, McQuillan J. Reproductive regrets among a population-based sample of U.S. women. Socius. 2022. https://doi.org/10.1177/23780231221142969.

Article  Google Scholar 

Hassan AH, Zalata AA, Christophe A, Comhaire F, Mostafa T, Chan WS, et al. Patient satisfaction is best predicted by low decisional regret among women with cancer seeking fertility preservation counseling (FPC). Fertil Steril. 2014;102(3): e162.

Article  Google Scholar 

Jayasuriya S, Peate M, Allingham C, Li N, Gillam L, Zacharin M, et al. Satisfaction, disappointment and regret surrounding fertility preservation decisions in the paediatric and adolescent cancer population. J Assist Reprod Genet. 2019;36(9):1805–22.

Article  PubMed  PubMed Central  Google Scholar 

Chan CHY, Lau HPB, Tam MYJ, Ng EHY. A longitudinal study investigating the role of decisional conflicts and regret and short-term psychological adjustment after IVF treatment failure. Hum Reprod. 2016;31(12):2772–80.

Article  PubMed  Google Scholar 

Duthie EA, Cooper A, Davis JB, Schoyer KD, Sandlow J, Strawn EY, et al. A conceptual framework for patient-centered fertility treatment. Reprod Health. 2017;14(1):114.

Article  PubMed  PubMed Central  Google Scholar 

Harris PA, Taylor R, Minor BL, Elliott V, Fernandez M, O’Neal L, et al. The REDCap consortium: building an international community of software platform partners. J Biomed Inform. 2019;95: 103208.

Article  PubMed  PubMed Central  Google Scholar 

Harris PA, Taylor R, Thielke R, Payne J, Gonzalez N, Conde JG. Research electronic data capture (REDCap)—A metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform. 2009;42(2):377–81.

Article  PubMed