Palliative Care Nursing Case Management in Young Adults With Advanced Rare Cancer: Case Discussion of a Multidisciplinary Approach

Viviana Fusetti, MSN, RN, is a case manager and nurse researcher at the Palliative Care, Pain Therapy and Rehabilitation Unit, Fondazione IRCCS Istituto Nazionale dei Tumori of Milan. She completed the MSN in research and management and is now attending the PhD in Nursing Science and Public Health. She is affiliated with Università degli Studi di Roma Tor Vergata, Rome, Italy, and National Cancer Institute, Milan, Italy.

Martina Angi, MD, is a medical doctor specialized in ocular oncology, is now hospital doctor in the Ocular Oncology Unit of the National Cancer Institute of Milan. She is expert in surgical treatment of uveal melanoma. She is affiliated with National Cancer Institute, Milan, Italy.

Augusto T. Caraceni, MD, is a head physician of the Palliative Care, Pain Therapy and Rehabilitation Unit of the National Cancer Institute of Milan, and director of the School of Specialization in Palliative Care Medicine of the Università degli Studi di Milano. He is also the cochairman of the European Center for Palliative Care Research. He is affiliated with National Cancer Institute, Milan, Italy, and Università degli Studi di Milano, Milan, Italy.

Lorenza Di Guardo, MD, is a medical doctor specialized in medical oncology and is now hospital doctor in the Medical Oncology Unit of the National Cancer Institute of Milan. She is expert in medical diagnosis and treatment skin and uveal melanoma. She is affiliated with National Cancer Institute, Milan, Italy.

Enrico Regalia, MD, is a medical doctor specialized in surgery and medical oncology and is now hospital doctor in the HPD Surgery and Liver Transplantation Unit of the National Cancer Institute of Milan. He is expert in surgical treatment of liver cancer. He is affiliated with National Cancer Institute, Milan, Italy.

Marco Bosisio, PsyD, is a psychotherapist in the Clinical Psychology Unit of the National Cancer Institute of Milan. He serves as clinician, researcher, and member of the board of directors in the School of Psycho-oncology of the same institution. He is affiliated with National Cancer Institute, Milan, Italy.

Silvia Lo Dico, MD, is a medical doctor specialized in medical oncology. She is now hospital doctor in the Palliative Care, Pain Therapy and Rehabilitation Unit of the National Cancer Institute of Milan. She is expert in medical diagnosis and treatment of cancer-related symptoms management. She is affiliated with National Cancer Institute, Milan, Italy.

Alessandra Pigni, MD, is a medical doctor specialized in medical oncology. She is senior researcher at the Palliative Care, Pain Therapy and Rehabilitation Unit of the National Cancer Institute of Milan. Coinvestigator of several national and international institutional clinical trials, she performed didactic activity at university and on professional and institutional educational programs. She is affiliated with National Cancer Institute, Milan, Italy.

Cinzia Brunelli, PhD, is a statistician and senior researcher in the Palliative Care, Pain Therapy and Rehabilitation Unit of the National Cancer Institute of Milan. She completed PhD in palliative care and currently she is associated editor of the supportive and palliative care section of Tumori Journal. She is affiliated with National Cancer Institute, Milan, Italy.

Maura Lusignani, MSN, RN, is a head of the bachelor degree in nursing and president of the MSc in Nursing of the Università degli Studi di Milano. She directs many master courses with a focus on nursing leadership. Recently, she became full professor in nursing sciences in the same university. She is affiliated with Università degli Studi di Milano, Milan, Italy, and Bachelor School of Nursing, ASST Grande Ospedale Metropolitano Niguarda, Milan, Italy.

Address correspondence to Augusto T. Caraceni, MD, Fondazione IRCCS Istituto Nazionale dei Tumori, via Venezian 1, 20143, Milan, Italy ([email protected]).

The author contributions are as follows: Conceptualization: V.F., M.A., A.T.C., L.D.G., E.R., M.B., A.P., C.B., S.L.D., and M.L.; writing—original draft: V.F., A.T.C., A.P., and M.L.; writing—review and editing: V.F., M.A., A.T.C., L.D.G., E.R., M.B., A.P., C.B., S.L.D., and M.L.; investigation: V.F., M.A., L.D.G., E.R., M.B., and S.L.D.; data curation: V.F.; resources: M.A and A.T.C.; supervision: A.T.C. and M.L.; and project administration: A.T.C. and M.L.

Because of the personal and sensitive nature of the data gathered in this study, the participant was assured that further data would remain confidential and would not be shared. Data are not available/the data that have been used are confidential.

A.C. has received consultant honoraria from Mundipharma, Pfizer/Eli Lilly Italia Spa, Angelini, Shionogi, Molteni, and Kyowa Kirin. He has also received research grants from Molteni & C Soc Esercizio Spa and Ipsen. Other authors report no conflicts of interest.

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