Program, Development

Kelley, Emily; Duff, Erica; Gombar, Theresa; Sullivan, Ryan; McBride, Jennifer

NYU Langone Health, New York, USA

Introduction: The ELSO registry is a vital repository of demographic, clinical and outcomes data that relies on ECMO Center self-report of over 200 data points. Because of growth in our ECMO program and surges in patient volume during the COVID-19 pandemic, our center’s capacity to enter data in real-time was strained resulting in backlogs and delays in data entry. Therefore, we identified an opportunity for improvement to allow for more rapid data collection and reporting to the ELSO registry utilizing our electronic medical record (EMR).

Methods/Results: Our previous process of data collection for the ELSO registry included manual tracking of basic patient demographics and ECMO run specifics, manual tracking of ELSO-defined complications for each ECMO run, and a manual chart audit for each data point within the EMR with concurrent registry entry. In order to streamline these processes, we collaborated with our information technology (IT) department to develop a comprehensive ECMO quality report utilizing Epic Clarity Reports. This report automated contains 93 of ELSO registry variables needed for entry. Manual chart audit is still performed for quality assurance and several data points continue to require manual collection.

Conclusion: An EMR based ECMO Clarity Report provides an automated report of the key data points and eases the burden of manual abstraction efforts, reducing the time it takes to enter the information into the ELSO registry. This in turn will allow for more real-time data entry and more complete information dissemination to the larger ECMO community.