Factors Influencing Potentially Futile Treatments at the End of Life in a Multiethnic Asian Cardiology Setting: A Qualitative Study

1. Dayer, M, Cowie, MR. Heart failure: diagnosis and healthcare burden. Clin Med. 2004;4(1):13-18.
Google Scholar | Crossref | Medline2. Richard Hobbs, FD . Clinical burden and health service challenges of chronic heart failure. Br J Gen Pract. 2010;60(577):611-615.
Google Scholar | Crossref | Medline3. Monteiro, MC, Magalhães, AS, Féres-Carneiro, T, Dantas, CR. The decision-making process in families of terminal ICU patients. Psico-USF. 2019;24(3):437-448.
Google Scholar | Crossref4. Ecarnot, F, Meunier-Beillard, N, Seronde, MF, et al. End-of-life situations in cardiology: a qualitative study of physicians’ and nurses’ experience in a large university hospital. BMC Palliat Care. 2018;17(1):112.
Google Scholar | Crossref | Medline5. Selman, L, Harding, R, Beynon, T, et al. Improving end-of-life care for patients with chronic heart failure: “Let’s hope it’ll get better, when I know in my heart of hearts it won’t”. Heart. 2007;93(8):963-967.
Google Scholar | Crossref | Medline6. Schneiderman, LJ, Jecker, NS, Jonsen, AR. Medical futility: its meaning and ethical implications. Ann Intern Med. 1990;112(12):949-954.
Google Scholar | Crossref | Medline | ISI7. Schneiderman, LJ . Defining medical futility and improving medical care. J Bioeth Inq. 2011;8(2):123-131.
Google Scholar | Crossref | Medline | ISI8. Aghabarary, M, Dehghan Nayeri, N. Medical futility and its challenges: a review study. J Med Ethics Hist Med. 2016;9:11.
Google Scholar | Medline9. Piers, RD, Azoulay, E, Ricou, B, et al. Perceptions of appropriateness of care among European and Israeli intensive care unit nurses and physicians. JAMA. 2011;306(24):2694-2703.
Google Scholar | Crossref | Medline10. Carter, HE, Lee, XJ, Gallois, C, et al. Factors associated with non-beneficial treatments in end of life hospital admissions: a multicentre retrospective cohort study in Australia. Bmj Open. 2019;9(11):e030955.
Google Scholar | Crossref | Medline11. Palda VAB, KW, McLean, RF, Chapman, MG. “Futile” care: do we provide it? why? A semistructured, Canada-wide survey of intensive care unit doctors and nurses. J Crit Care. 2005;20(3):207-213.
Google Scholar | Crossref | Medline12. Huynh, TN, Kleerup, EC, Wiley, JF, et al. The frequency and cost of treatment perceived to be futile in critical care. JAMA Int Med. 2013;173(20):1887-1894.
Google Scholar | Crossref | Medline | ISI13. Efstathiou, N, Ives, J. Compassionate care during withdrawal of treatment: a secondary analysis of ICU nurses’ experiences. Nurs Ethics. 2018;25(8):1075-1086.
Google Scholar | SAGE Journals | ISI14. Johnson, M, Nunn, A, Hawkes, T, Stockdale, S, Daley, A. Planning for end-of-life care in heart failure: experience of two integrated cardiology-palliative care teams. Br J Cardiol. 2012;19(2):71.
Google Scholar | Crossref15. Murray, SA, Kendall, M, Boyd, K, Sheikh, A. Illness trajectories and palliative care. BMJ. 2005;330(7498):1007-1011.
Google Scholar | Crossref | Medline16. Murray, SA, Boyd, K, Kendall, M, Worth, A, Benton, TF, Clausen, H. Dying of lung cancer or cardiac failure: prospective qualitative interview study of patients and their carers in the community. BMJ. 2002;325(7370):929.
Google Scholar | Crossref | Medline17. Murray, SA, Kendall, M, Grant, E, Boyd, K, Barclay, S, Sheikh, A. Patterns of social, psychological, and spiritual decline toward the end of life in lung cancer and heart failure. J Pain Symptom Manag. 2007;34(4):393-402.
Google Scholar | Crossref | Medline | ISI18. Howlett, J, Morrin, L, Fortin, M, et al. End-of-life planning in heart failure: it should be the end of the beginning. Can J Cardiol. 2010;26(3):135-141.
Google Scholar | Crossref | Medline19. Thompson, DR . Improving end-of-life care for patients with chronic heart failure. Heart. 2007;93(8):901-902.
Google Scholar | Crossref | Medline20. Denvir, MA, Highet, G, Robertson, S, et al. Future care planning for patients approaching end-of-life with advanced heart disease: an interview study with patients, carers and healthcare professionals exploring the content, rationale and design of a randomised clinical trial. BMJ Open. 2014;4(7):e005021.
Google Scholar | Crossref | Medline21. Willmott, L, White, B, Gallois, C, et al. Reasons doctors provide futile treatment at the end of life: a qualitative study. J Med Ethics. 2016;42(8):496-503.
Google Scholar | Crossref | Medline22. Glaser, BG, Strauss, AL. The Discovery of Grounded Theory: Strategies for Qualitative Research. Aldine de Gruyter; 1967.
Google Scholar23. Strauss, AL . Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory. 3rd ed. Thousand Oaks, California: SAGE Publishing; 2008. Available from: https://methods.sagepub.com/book/basics-of-qualitative-research.
Google Scholar24. Tong, A, Sainsbury, P, Craig, J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349-357.
Google Scholar | Crossref | Medline | ISI25. Anstey, MH, Adams, JL, McGlynn, EA. Perceptions of the appropriateness of care in California adult intensive care units. Crit Care. 2015;19(1):51.
Google Scholar | Crossref | Medline26. Anstey, MH, Litton, E, Jha, N, Trevenen, ML, Webb, S, Mitchell, IA. A comparison of the opinions of intensive care unit staff and family members of the treatment intensity received by patients admitted to an intensive care unit: a multicentre survey. Aust Crit Care. 2019;32(5):378-382.
Google Scholar | Crossref | Medline27. Chamberlin, P, Lambden, J, Kozlov, E, et al. Clinicians’ perceptions of futile or potentially inappropriate care and associations with avoidant behaviors and burnout. J Palliat Med. 2019;22(9):1039-1045.
Google Scholar | Crossref | Medline28. Downar, J, You, JJ, Bagshaw, SM, et al. Nonbeneficial treatment Canada: definitions, causes, and potential solutions from the perspective of healthcare practitioners. Crit Care Med. 2015;43(2):270-281.
Google Scholar | Crossref | Medline29. Huynh TNW, J, Tseng, CH, Vespa, PM, Kleerup, EC, Wenger, N. Differences between attendings’ and fellows’ perceptions of inappropriate treatment in the intensive care unit. Am J Respir Crit Care Med. 2015;90(3):324-330.
Google Scholar30. Jox, RJ, Schaider, A, Marckmann, G, Borasio, GD. Medical futility at the end of life: the perspectives of intensive care and palliative care clinicians. J Med Ethics. 2012;38(9):540-545.
Google Scholar | Crossref | Medline | ISI31. Kadooka, Y, Asai, A, Bito, S. Can physicians judgments of futility be accepted by patients?: a comparative survey of Japanese physicians and laypeople. BMC Med Ethics. 2012;13(1):7.
Google Scholar | Crossref | Medline32. Sibbald, R, Downar, J, Hawryluck, L. Perceptions of “futile care” among caregivers in intensive care units. CMAJ (Can Med Assoc J). 2007;177(10):1201-1208.
Google Scholar | Crossref | Medline | ISI33. Singal, RK, Sibbald, R, Morgan, B, et al. A prospective determination of the incidence of perceived inappropriate care in critically ill patients. Can Respir J J Can Thorac Soc. 2014;21(3):165-170.
Google Scholar | Crossref | Medline34. Aghabarary, M, Nayeri, ND. Reasons behind providing futile medical treatments in Iran: a qualitative study. Nurs Ethics. 2017;24(1):33-45.
Google Scholar | SAGE Journals | ISI35. Barclay, S, Momen, N, Case-Upton, S, Kuhn, I, Smith, E. End-of-life care conversations with heart failure patients: a systematic literature review and narrative synthesis. Br J Gen Pract. 2011;61(582):e49-62.
Google Scholar | Crossref | Medline | ISI36. Doorenbos, AZ, Levy, WC, Curtis, JR, Dougherty, CM. An intervention to enhance goals-of-care communication between heart failure patients and heart failure providers. J Pain Symptom Manag. 2016;52(3):353-360.
Google Scholar | Crossref | Medline37. Williams, AM . Education, training, and mentorship of caregivers of canadians experiencing a life-limiting illness. J Palliat Med. 2018;21(S1):S45-s9.
Google Scholar | Crossref | Medline38. Dionne-Odom, JN, Kono, A, Frost, J, et al. Translating and testing the ENABLE: CHF-PC concurrent palliative care model for older adults with heart failure and their family caregivers. J Palliat Med. 2014;17(9):995-1004.
Google Scholar | Crossref | Medline39. Levinson, M, Walker, KJ, Hanning, J, Dunlop, W, Cheong, E, Mills, A. Medical perspectives regarding goals-of-care consultations in emergency departments. Psychol Health Med. 2019;24(9):1137-1147.
Google Scholar | Crossref | Medline40. Robinson, F, Cupples, M, Corrigan, M. Implementing a resuscitation policy for patients at the end of life in an acute hospital setting: qualitative study. Palliat Med. 2007;21(4):305-312.
Google Scholar | SAGE Journals | ISI41. Chung, H-O, Oczkowski, SJW, Hanvey, L, Mbuagbaw, L, You, JJ. Educational interventions to train healthcare professionals in end-of-life communication: a systematic review and meta-analysis. BMC Med Educ. 2016;16(1):131.
Google Scholar | Crossref | Medline42. White, B, Willmott, L, Close, E, et al. What does “futility” mean? An empirical study of doctors’ perceptions. Med J Aust. 2016;204(8):318.
Google Scholar | Crossref | Medline

Comments (0)

No login
gif