The attributes of hospital-based coronary artery diseases registries with a focus on key registry processes: A systematic review

Abdelhak, M, Grostick, S, Hanken, MA (2014) Health Information-e-book: Management of a Strategic Resource. Amsterdam: Elsevier Health Sciences.
Google Scholar Alberta Provincial PRoject for Outcome Assessment in Coronary Heart Disease (APPROACH) (2019) Available at: http://www.approach.org/index.html (accessed 13 August 2019).
Google Scholar Andrianopoulos, N, Dinh, D, Duffy, S, et al. (2011) Quality control activities associated with registries in interventional cardiology and surgery. Heart, Lung and Circulation 20: 180–186.
Google Scholar | Crossref | Medline Arora, J, Tavella, R (2017) Implementing Ichom’s Standard Sets of Outcomes: Coronary Artery Disease in the Coronary Angiogram Database of South Australia (CADOSA). London: UK Int Consort Heal Outcomes Meas, pp. 1–16.
Google Scholar Bauer, T, Mollmann, H, Zeymer, U, et al. (2012) Multivessel percutaneous coronary intervention in patients with stable angina: a common approach? Lessons learned from the EHS PCI registry. Heart Vessels 27: 453–459.
Google Scholar | Crossref | Medline Bauters, C, Deneve, M, Tricot, O, et al. (2014) Prognosis of patients with stable coronary artery disease (from the CORONOR study). The American Journal of Cardiology 113: 1142–1145.
Google Scholar | Crossref | Medline | ISI Bauters, C, Tricot, O, Meurice, T, et al. (2017) Long-term risk and predictors of cardiovascular death in stable coronary artery disease: the CORONOR study. Coronary Artery Disease 28: 636–641.
Google Scholar | Crossref | Medline Bęćkowski, M, Gierlotka, M, Gąsior, M, et al. (2018) Risk factors predisposing to acute coronary syndromes in young women ≤45 years of age. International Journal of Cardiology 264: 165–169.
Google Scholar | Crossref | Medline Bernelli, C, Chieffo, A, Buchanan, GL, et al. (2013) New-generation drug-eluting stent experience in the percutaneous treatment of unprotected left main coronary artery disease: the NEST registry. Journal of Invasive Cardiology 25: 269–275.
Google Scholar | Medline Biancari, F, Onorati, F, Faggian, G, et al. (2014) Determinants of outcome after isolated coronary artery bypass grafting in patients aged ≤50 years (from the Coronary aRtery diseAse in younG adultS Study). American Journal of Cardiology 113: 275–278.
Google Scholar | Crossref | Medline Center for Disease Control and Prevention (2018) Heart disease facts. Available at: https://www.cdc.gov/heartdisease/ (accessed 17 July 2018).
Google Scholar Chaikhouni, A, Gehani, AA, Horak, J, et al. (1998) Coronary angiography in Qatar: the first ten years. Angiology 49: 625–630.
Google Scholar | SAGE Journals CLARIFY (2009) Registry set to improve disease understanding, management and help save lives. Barcelona. Spain. Available at: https://www.clarify-registry.com/journalists/press-release/# (accessed 21 May 2019).
Google Scholar De, LL, Temporelli, P, Riccio, C, et al. (2019) Clinical outcomes, pharmacologic treatment and quality of life of patients with stable coronary artery diseases managed by cardiologists: 1-year results of the START study. European Heart Journal. Quality of Care & Clinical Outcomes 5(4): 334–342.
Google Scholar | Crossref | Medline De Luca, L, Temporelli, PL, Lucci, D, et al. (2018) Current management and treatment of patients with stable coronary artery diseases presenting to cardiologists in different clinical contexts: a prospective, observational, nationwide study. European Journal of Preventive Cardiology 25: 43–53.
Google Scholar | SAGE Journals | ISI Eagle, K (2002) Lessons from GRACE: the Global Registry of Acute Coronary Events. European Heart Journal Supplements 4: E24–E31.
Google Scholar | Crossref Eclinical Trials (2019) Gulf COAST Available at: http://www.eclinicaltrials.co/portfolio-item/gulf-coast-registry (accessed 13 May 2019).
Google Scholar El-Menyar, A, Zubaid, M, Sulaiman, K, et al. (2010) In-Hospital Major Clinical Outcomes in Patients With Chronic Renal Insufficiency Presenting With Acute Coronary Syndrome: Data From a Registry of 8176 Patients. Mayo Clinic Proceedings. Amsterdam: Elsevier, pp. 332–340.
Google Scholar Evelyn, MSMA, Weiss, AF (1999) Self-Instructional Manuals for Cancer Registrars. USA: Department of Health and Human Services-Public Health Service-National Institutes of Health, NIH publication, pp. 16–21.
Google Scholar Finegold, JA, Asaria, P, Francis, DP (2013) Mortality from ischaemic heart disease by country, region, and age: statistics from World Health Organisation and United Nations. International Journal of Cardiology 168: 934–945.
Google Scholar | Crossref | Medline | ISI Fleiss, B, Wong, F, Brownfoot, F, et al. (2019) Knowledge gaps and emerging research areas in intrauterine growth restriction-associated brain injury. Frontiers in Endocrinology 10: 188.
Google Scholar | Crossref | Medline Gerloni, R, Mucci, L, Ciarambino, T, et al. (2017) Management of stable coronary artery disease: from evidence to clinical practice. Italian Journal of Medicine 11: 114–133.
Google Scholar | Crossref Giri, D, Acharya, UR, Martis, RJ, et al. (2013) Automated diagnosis of coronary artery disease affected patients using LDA, PCA, ICA and discrete wavelet transform. Knowledge-Based Systems 37: 274–282.
Google Scholar | Crossref Gliklich, RE (2014) AHRQ methods for effective health care. In: Gliklich, RE, Dreyer, NA, et al. (eds) Registries for Evaluating Patient Outcomes: A User’s Guide. Rockville, MD: Agency for Healthcare Research and Quality, pp. 13–127.
Google Scholar Get with the Guidelines – Coronary Artery Disease (2019) Get with the guidelines – CAD. Available at: https://www.heart.org/en/professional/quality-improvement/get-with-the-guidelines/get-with-the-guidelines-coronary-artery-disease (accessed 17 April 2019).
Google Scholar Global Registry of Acute Coronary Events (GRACE) (2001) Rationale and design of the GRACE (Global Registry of Acute Coronary Events) project: a multinational registry of patients hospitalized with acute coronary syndromes. American Heart Journal 141: 190–199.
Google Scholar | Crossref | Medline Global Registry of Acute Coronary Events (GRACE) (2020) Home page. Available at: https://www.outcomes-umassmed.org/GRACE/ (accessed 9 March 2020).
Google Scholar Hachamovitch, R, Johnson, JR, Hlatky, MA, et al. (2009) The study of myocardial perfusion and coronary anatomy imaging roles in CAD (SPARC): design, rationale, and baseline patient characteristics of a prospective, multicenter observational registry comparing PET, SPECT, and CTA for resource utilization and clinical outcomes. Journal of Nuclear Cardiology 16(6): 935–948.
Google Scholar Han, Y, Chen, J, Qiu, M, et al. (2018) Predicting long-term ischemic events using routine clinical parameters in patients with coronary artery disease: the OPT-CAD risk score. Cardiovascular Therapeutics 36: e12441.
Google Scholar | Crossref | Medline Hanauer, DA, Miela, G, Chinnaiyan, AM, et al. (2007) The registry case finding engine: an automated tool to identify cancer cases from unstructured, free-text pathology reports and clinical notes. Journal of the American College of Surgeons 205: 690–697.
Google Scholar | Crossref | Medline Hira, RS, Bhatt, DL, Fonarow, GC, et al. (2016) Temporal trends in care and outcomes of patients receiving fibrinolytic therapy compared to primary percutaneous coronary intervention: insights from the get with the guidelines coronary artery disease (GWTG-CAD) registry. Journal of the American Heart Association 5(10): e004113.
Google Scholar Hlatky, MA, Shilane, D, Hachamovitch, R, et al. (2014) Economic outcomes in the study of myocardial perfusion and coronary anatomy imaging roles in coronary artery disease registry: the SPARC study. Journal of the American College of Cardiology 63: 1002–1008.
Google Scholar | Crossref | Medline Hong, Y, Graham, MM, Southern, D, et al. (2019) The association between chronic obstructive pulmonary disease and coronary artery disease in patients undergoing coronary angiography. COPD Journal of Chronic Obstructive Pulmonary Disease 16: 66–71.
Google Scholar | Crossref Hoy, D, Brooks, P, Woolf, A, et al. (2012) Assessing risk of bias in prevalence studies: modification of an existing tool and evidence of interrater agreement. Journal of Clinical Epidemiology 65: 934–939.
Google Scholar | Crossref | Medline | ISI Hueb, W, Gersh, BJ, Costa, F, et al. (2007) Impact of diabetes on five-year outcomes of patients with multivessel coronary artery disease. The Annals of Thoracic Surgery 83: 93–99.
Google Scholar | Crossref | Medline Iyengar, SS, Gupta, R, Ravi, S, et al. (2017) Premature coronary artery disease in India: coronary artery disease in the young (CADY) registry. Indian Heart Journal 69: 211–216.
Google Scholar | Crossref | Medline Kaila, KS, Norris, CM, Graham, MM, et al. (2014) Long-term survival with revascularization in South Asians admitted with an acute coronary syndrome (from the Alberta Provincial Project for Outcomes Assessment in Coronary Heart Disease Registry). The American Journal of Cardiology 114: 395–400.
Google Scholar | Crossref | Medline | ISI Khosla, S, Kunjummen, B, Khaleel, R, et al. (2003) Safety of therapeutic β-blockade in patients with coexisting bronchospastic airway disease and coronary artery disease. American Journal of Therapeutics 10: 48–50.
Google Scholar | Crossref | Medline LaBresh, KA, Fonarow, GC, Smith, SC, et al. (2007) Improved treatment of hospitalized coronary artery disease patients with the get with the guidelines program. Critical Pathways in Cardiology 6: 98–105.
Google Scholar | Crossref | Medline Lautamäki, A, Airaksinen, KJ, Kiviniemi, T, et al. (2014) Prognosis and disease progression in patients under 50 years old undergoing PCI: the CRAGS (coronary artery disease in young adults) study. Atherosclerosis 235: 483–487.
Google Scholar | Crossref | Medline Liao, Y, Cooper, RS, Ghali, JK, et al. (1992) Survival rates with coronary artery disease for black women compared with black men. Jama 268: 1867–1871.
Google Scholar | Crossref | Medline Liao, Y, Cooper, RS, Ghali, JK, et al. (1993) Sex differences in the impact of coexistent diabetes on survival in patients with coronary heart disease. Diabetes Care 16(5): 708–713.
Google Scholar | Crossref Lin, GM, Li, YH, Lin, CL, et al. (2013) Gender differences in the impact of diabetes on mortality in patients with established coronary artery disease: a report from the Eastern Taiwan integrated health care delivery system of Coronary Heart Disease (ET-CHD) registry, 1997–2006. Journal of Cardiology 61: 393–398.
Google Scholar | Crossref | Medline Lloyd-Jones, D, Adams, R, Carnethon, M, et al. (2009) Heart disease and stroke statistics-2009 update: a report from the American Heart Association Statistics Committee and Stroke Statistics Subcommittee. Circulation 119: e21–181.
Google Scholar | Crossref | Medline | ISI Maffei, E, Midiri, M, Russo, V, et al. (2013) Rationale, design and methods of CTCA-PRORECAD (Computed Tomography Coronary Angiography Prognostic Registry for Coronary Artery Disease): a multicentre and multivendor registry. La Radiologia Medica 118(4): 591–607.
Google Scholar | Crossref Manitoba Centre for Health Policy (MCHP) (2018) Definition of coronary heart disease. Available at: http://mchp-appserv.cpe.umanitoba.ca/viewConcept.php?printer=Y&conceptID=1083 (accessed 23 April 2018).
Google Scholar Moher, D, Liberati, A, Tetzlaff, J, et al. (2009) Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. Annals of Internal Medicine 151: 264–269.
Google Scholar | Crossref | Medline | ISI Mojarrab, S, Rafei, A, Akhondzadeh, S, et al. (2017) Diseases and health outcomes registry systems in IR Iran: successful initiative to improve public health programs, quality of care, and biomedical research. Archives of Iranian Medicine 20: 696–703.
Google Scholar | Medline Myers, WO, Blackstone, EH, Davis, K, et al. (1999) CASS registry: long term surgical survival. Coronary Artery Surgery Study. Journal of the American College of Cardiology 33: 488–498.
Google Scholar | Crossref | Medline | ISI National Cancer Institute (2019a) SEER training modules. Cancer patient follow-up: follow-up process. Available at: https://training.seer.cancer.gov/followup/process/ (accessed 21 May 2019).
Google Scholar National Cancer Institute (2019b) SEER training modules. Case finding. Available at: https://training.seer.cancer.gov/casefinding/ (accessed 22 May 2019).
Google Scholar National Quality Registry Network (2018) What is a clinical data registry?. Available at: http://www.abms.org/media/1358/what-is-a-clinical-data-registry.pdf. (accessed 6 April 2018)
Google Scholar Pichlhofer, O, Maier, M, Badr-Eslam, R, et al. (2017) Clinical presentation and management of stable coronary artery disease in Austria. PLoS One 12: e0176257.
Google Scholar | Crossref | Medline Pollard, C, Bailey, KA, Petitte, T, et al. (2009) Electronic patient registries improve diabetes care and clinical outcomes in rural community health centers. The Journal of Rural Health 25:

Comments (0)

No login
gif