Long-term follow-up of symptom and quality of life changes in patients with narcolepsy during and after the COVID-19 pandemic

American Academy of Sleep Medicine. International Classification of Sleep Disorders 3rd ed Darien IL: AASM. 2014.

Chin WC, Wang CH, Huang YS, et al. Quality of life changes and their predictors in young adult narcolepsy patients after treatment: A real-world cohort study. Front Psych. 2022;13:956037.

Article  Google Scholar 

Ozaki A, Inoue Y, Nakajima T, et al. Health-related quality of life among drug-naive patients with narcolepsy with cataplexy narcolepsy without cataplexy and idiopathic hypersomnia without long sleep time. J Clin Sleep Med. 2008;4(6):572–8.

Article  PubMed  PubMed Central  Google Scholar 

Song ML, Kim KT, Motamedi GK, Cho YW. The influential factor of narcolepsy on quality of life: compared to obstructive sleep apnea with somnolence or insomnia. Sleep Biol Rhythm. 2019;17(4):447–54.

Article  Google Scholar 

Bruni O, Malorgio E, Doria M, et al. Changes in sleep patterns and disturbances in children and adolescents in Italy during the Covid-19 outbreak. Sleep Med. 2022;91:166–74.

Article  PubMed  Google Scholar 

Hawes MT, Szenczy AK, Klein DN, et al. Increases in depression and anxiety symptoms in adolescents and young adults during the COVID-19 pandemic. Psychol Med. 2021;52(14):1–9.

Google Scholar 

Sinha M, Pande B, Sinha R. Impact of COVID-19 lockdown on sleep-wake schedule and associated lifestyle related behaviour: a national survey. J of Public Health Res. 2020;9(3):1826.

Article  Google Scholar 

Pinto J, van Zeller M, Amorim P, et al. Sleep quality in times of COVID-19 pandemic. Sleep Med. 2020;74:81–5.

Article  PubMed  PubMed Central  Google Scholar 

Nigam M, Hippolyte A, Dodet P, et al. Sleeping through a pandemic: impact of COVID-19-related restrictions on narcolepsy and idiopathic hypersomnia. J Clin Sleep Med. 2022;18(1):255–63.

Article  PubMed  PubMed Central  Google Scholar 

Postiglione E, Pizza F, Ingravallo F, et al. Impact of COVID-19 pandemic lockdown on narcolepsy type 1 management. Brain and Behav. 2021;11(1): e01955.

Article  Google Scholar 

D’Anselmo A, Agnoli S, Filardi M, Pizza F, et al. Being creative during lockdown: the relationship between creative potential and COVID-19-related psychological distress in narcolepsy type 1. J Sleep Res. 2022;31(2): e13461.

Article  PubMed  Google Scholar 

Rodrigues Aguilar AC, Frange C, Huebra L, et al. The effects of the COVID-19 pandemic on patients with narcolepsy. J Clin Sleep Med. 2021;17(4):621–7.

Article  PubMed  PubMed Central  Google Scholar 

Barateau L, Chenini S, Rassu AL, et al. Changes in sleep pattern during the COVID-19 lockdown in patients with narcolepsy idiopathic hypersomnia and restless legs syndrome. Neurology. 2022;99(14):e1475–85.

Article  PubMed  Google Scholar 

Marčić M, Marčić L, Marčić B. SARS-CoV-2 infection causes relapse of kleine-levin syndrome: case report and review of literature. Neurol Int. 2021;13(3):328–34.

Article  PubMed  PubMed Central  Google Scholar 

Nasrullah A, Javed A, Ashraf O, Malik K. Possible role of COVID-19 in the relapse of klein-levin syndrome. Respir Med Case Rep. 2021;33:101445.

PubMed  PubMed Central  Google Scholar 

Chin WC, Huang YS, Tang I, et al. Impact of Taiwan’s COVID-19 lockdown on the symptom severity and quality of life of patients with narcolepsy. Sleep Biol Rhythm. 2023;21(4):419–29.

Article  Google Scholar 

Chin WC, Yao TC, Tang I, et al. The impact of COVID-19 lockdown on sleep patterns, emotions and behaviors of children and adolescents in Taiwan. Front Psych. 2022;13:975399.

Article  Google Scholar 

Johns MW. A new method for measuring daytime sleepiness: the epworth sleepiness scale. Sleep. 1991;14:540–5.

Article  CAS  PubMed  Google Scholar 

van der Heide A, van Schie MK, Lammers GJ, et al. Comparing treatment effect measurements in narcolepsy: the sustained attention to response task epworth sleepiness scale and maintenance of wakefulness test. Sleep. 2015;38(7):1051–8.

Article  PubMed  PubMed Central  Google Scholar 

Hays RD, Hayashi T, Carson S, Ware JE. Users Guide for the Multitrait Analysis Program (MAP). RAND Corporation Santa Monica CA. 1988.

Sanson-Fisher RW, Perkins JJ. Adaptation and validation of the SF-36 health survey for use in australia. J Clin Epidemiol. 1998;51(11):961–7.

Article  CAS  PubMed  Google Scholar 

Frange C, de Oliveira GP, Coelho FMS. COVID-19 and central nervous system hypersomnias. Curr Sleep Medicine Reports. 2022;8(3):42–9.

Article  Google Scholar 

Sarkanen T, Partinen M, Bjorvatn B, et al. Association between hypersomnolence and the COVID-19 pandemic: the international COVID-19 sleep study (ICOSS). Sleep Med. 2023;107:108–15.

Article  PubMed  PubMed Central  Google Scholar 

Voss EA, Shoaibi A, Lai LYH, et al. Contextualising adverse events of special interest to characterise the baseline incidence rates in 24 million patients with COVID-19 across 26 databases: a multinational retrospective cohort study. EClinicalMedicine. 2023;58:101932.

Article  PubMed  PubMed Central  Google Scholar 

Moura AEF, Oliveira DN, Torres DM, et al. Central hypersomnia and chronic insomnia: expanding the spectrum of sleep disorders in long COVID syndrome-a prospective cohort study. BMC Neurol. 2022;22(1):1–10.

Article  Google Scholar 

Ramberger M, Högl B, Stefani A, et al. CD4+ T-cell reactivity to orexin/hypocretin in patients with narcolepsy type 1. Sleep. 2017;40(3):zsw070. https://doi.org/10.1093/sleep/zsw070.

Article  PubMed  Google Scholar 

Bonvalet M, Ollila HM, Ambati A, Mignot E. Autoimmunity in narcolepsy. Curr Opin Pulm Med. 2017;23(6):522.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Awogbindin IO, Ben-Azu B, Olusola BA, et al. Microglial implications in SARS-CoV-2 infection and COVID-19: lessons from viral RNA neurotropism and possible relevance to Parkinson’s disease. Front Cell Neurosci. 2021;15:199.

Article  Google Scholar 

Ellul MA, Benjamin L, Singh B, et al. Neurological associations of COVID-19. Lancet Neurol. 2020;19(9):767–83.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Nakayama H, Matsuzaki T, Mihara S, et al. Change of Internet use and bedtime among junior high school students after long-term school closure due to the coronavirus disease 2019 pandemic. Children. 2021;8(6):480.

Article  PubMed  PubMed Central  Google Scholar 

Kimura S, Takaoka Y, Sugano A. Increase in the Number and Duration of Sleep Episodes During Class After Reopening of Schools Following Closure due to COVID-19. Kobe J Med Sci. 2022;68(1):E23–9.

PubMed  PubMed Central  Google Scholar 

Won C, Mahmoudi M, Qin L, et al. The impact of gender on timeliness of narcolepsy diagnosis. J Clin Sleep Med. 2014;10(1):89–95.

Article  PubMed  PubMed Central  Google Scholar 

Filardi M, D’Anselmo A, Mazzoni A, et al. The importance of social zeitgeber in paediatric type 1 narcolepsy: what we can learn from the COVID-19 restrictions adopted in italy? J Sleep Res. 2022;31(1): e13423.

Article  PubMed  Google Scholar 

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