Weldring T, Smith SM. Patient-reported outcomes (PROs) and patient-reported outcome measures (PROMs). Health Serv Insights. 2013;6:61–8.

PubMed  PubMed Central  Google Scholar 

Kingsley C, Patel S. Patient-reported outcome measures and patient-reported experience measures. BJA Education. 2017;17(4):137–44.

Article  Google Scholar 

Kaplan RS, Porter ME. How to solve the cost crisis in health care. Harv Bus Rev. 2011;89(9):46–52 (56-61 passim).

PubMed  Google Scholar 

Withers K, Palmer R, Lewis S, Carolan-Rees G. First steps in PROMs and PREMs collection in Wales as part of the prudent and value-based healthcare agenda. Qual Life Res. 2021;30(11):3157–70.

Article  PubMed  Google Scholar 

Colorectal cancer statistics. https://www.wcrf.org/dietandcancer/cancer-trends/colorectal-cancer-statistics. Accessed 6 Dec 2023.

Rudolph C, Petersen GS, Pritzkuleit R, Storm H, Katalinic A. The acceptance and applicability of a patient-reported experience measurement tool in oncological care: a descriptive feasibility study in northern Germany. BMC Health Serv Res. 2019;19(1):786.

Article  PubMed  PubMed Central  Google Scholar 

Geessink NH, Schoon Y, Olde Rikkert MG, van Goor H. Training surgeons in shared decision-making with cancer patients aged 65 years and older: a pilot study. Cancer Manag Res. 2017;9:591–600.

Article  PubMed  PubMed Central  Google Scholar 

Neilson LJ, Patterson J, von Wagner C, Hewitson P, McGregor LM, Sharp L, Rees CJ. Patient experience of gastrointestinal endoscopy: informing the development of the Newcastle ENDOPREM. Frontline Gastroenterol. 2020;11(3):209–17.

Article  PubMed  PubMed Central  Google Scholar 

The Cancer Continuum. https://canceratlas.cancer.org/taking-action/cancer-continuum/. Accessed 6 Dec 2023.

Scanlon B, Brough M, Wyld D, Durham J. Equity across the cancer care continuum for culturally and linguistically diverse migrants living in Australia: a scoping review. Global Health. 2021;17(1):87.

Article  PubMed  PubMed Central  Google Scholar 

Jackson GL, Zullig LL, Phelan SM, Provenzale D, Griffin JM, Clauser SB, Haggstrom DA, Jindal RM, van Ryn M. Patient characteristics associated with the level of patient-reported care coordination among male patients with colorectal cancer in the Veterans Affairs health care system. Cancer. 2015;121(13):2207–13.

Article  PubMed  Google Scholar 

Napoles AM, Santoyo-Olsson J, Stewart AL, Olmstead J, Gregorich SE, Farren G, Cabral R, Freudman A, Perez-Stable EJ. Physician counseling on colorectal cancer screening and receipt of screening among Latino patients. J Gen Intern Med. 2015;30(4):483–9.

Article  PubMed  Google Scholar 

Pollack CE, Rastegar A, Keating NL, Adams JL, Pisu M, Kahn KL. Is self-referral associated with higher quality care? Health Serv Res. 2015;50(5):1472–90.

Article  PubMed  PubMed Central  Google Scholar 

Roydhouse JK, Gutman R, Keating NL, Mor V, Wilson IB. Differences between proxy and patient assessments of cancer care experiences and quality ratings. Health Serv Res. 2018;53(2):919–43.

Article  PubMed  Google Scholar 

Treiman K, McCormack L, Wagner L, Roach N, Moultrie R, Sanoff H, Bann C, Street RL Jr, Ashok M, Reeve BB. Factors affecting the communication experiences of newly diagnosed colorectal cancer patients. Patient Educ Couns. 2018;101(9):1585–93.

Article  PubMed  Google Scholar 

van Ryn M, Phelan SM, Arora NK, Haggstrom DA, Jackson GL, Zafar SY, Griffin JM, Zullig LL, Provenzale D, Yeazel MW, et al. Patient-reported quality of supportive care among patients with colorectal cancer in the Veterans Affairs Health Care System. J Clin Oncol. 2014;32(8):809–15.

Article  PubMed  PubMed Central  Google Scholar 

Burton-Chase AM, Parker WM, Polivka KM, Gritz ER, Amos CI, Lu KH, Lynch PM, Rodriguez-Bigas MA, Nancy You Y, Peterson SK. A comparison between Lynch syndrome and sporadic colorectal cancer survivors’ satisfaction with their healthcare providers. Cancer Med. 2017;6(3):698–707.

Article  PubMed  PubMed Central  Google Scholar 

Havyer RD, van Ryn M, Wilson PM, Bangerter LR, Griffin JM. Concordance of patient and caregiver reports on the quality of colorectal cancer care. J Oncol Pract. 2019;15(11):e979–88.

Article  PubMed  PubMed Central  Google Scholar 

Durcinoska I, Young JM, Solomon MJ. Patterns and predictors of colorectal cancer care coordination: a population-based survey of Australian patients. Cancer. 2017;123(2):319–26.

Article  PubMed  Google Scholar 

Young JM, Durcinoska I, DeLoyde K, Solomon MJ. Patterns of follow up and survivorship care for people with colorectal cancer in new South Wales, Australia: a population-based survey. BMC Cancer. 2018;18(1):339.

Article  PubMed  PubMed Central  Google Scholar 

Brotons A, Guilabert M, Lacueva FJ, et al. The colonoscopy satisfaction and safety questionnaire (CSSQP) for colorectal cancer screening: a development and validation study. Int J Environ Res Public Health. 2019;16(3):392. https://doi.org/10.3390/ijerph16030392.

Koreli A, Briassoulis G, Sideris M, Philalithis A, Papagrigoriadis S. Transanal endoscopic microsurgery (TEMS) for rectal cancer: patient decision-making, postoperative experience and quality of life. In Vivo. 2021;35(2):1235–45.

Article  PubMed  PubMed Central  Google Scholar 

Drury A, Payne S, Brady AM. Identifying associations between quality of life outcomes and healthcare-related variables among colorectal cancer survivors: a cross-sectional survey study. Int J Nurs Stud. 2020;101:103434.

Article  PubMed  Google Scholar 

Jamieson Gilmore K, Corazza I, Coletta L, Allin S. The uses of Patient Reported Experience Measures in health systems: a systematic narrative review. Health Policy. 2023;128:1–10.

Article  PubMed  Google Scholar 

Hodson M, Andrew S, Michael Roberts C. Towards an understanding of PREMS and PROMS in COPD. Breathe. 2013;9(5):358–64.

Article  Google Scholar 

Mooney K, Berry DL, Whisenant M, Sjoberg D. Improving cancer care through the patient experience: how to use patient-reported outcomes in clinical practice. Am Soc Clin Oncol Educ Book. 2017;37:695–704.

Article  PubMed  Google Scholar 

Modules. https://qol.eortc.org/modules/. Accessed 6 Dec 2023.

Pun JKH, Chan EA, Wang S, Slade D. Health professional-patient communication practices in East Asia: an integrative review of an emerging field of research and practice in Hong Kong, South Korea, Japan, Taiwan, and Mainland China. Patient Educ Couns. 2018;101(7):1193–206.

Article  PubMed  Google Scholar 

Foo C, Tan YL, Shrestha P, Eh KX, Ang IYH, Nurjono M, Toh SA, Shiraz F. Exploring the dimensions of patient experience for community-based care programmes in a multi-ethnic Asian context. PLoS One. 2020;15(11):e0242610.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Bull C, Callander EJ. Current PROM and PREM use in health system performance measurement: still a way to go. Patient Experience Journal. 2022;9(1):12–8.

Article  Google Scholar 

Black N, Varaganum M, Hutchings A. Relationship between patient reported experience (PREMs) and patient reported outcomes (PROMs) in elective surgery. BMJ Qual Saf. 2014;23(7):534–42.

Article  PubMed  Google Scholar 

Athanatos L, Sandean DP, Burgula M, Lee B, Pandey R, Singh HP. Use of patient reported experience measure and patient reported outcome measures to evaluate differences in surgical or non-surgical management of humeral shaft fractures. Shoulder Elbow. 2023;15(2):140–50.

Article  PubMed  Google Scholar 

Bull C, Teede H, Watson D, Callander EJ. Selecting and implementing patient-reported outcome and experience measures to assess health system performance. JAMA Health Forum. 2022;3(4):e220326.

Article  PubMed  Google Scholar 

Bozic KJ. Improving value in healthcare. Clin Orthop Relat Res. 2013;471(2):368–70.

Article  PubMed  Google Scholar 

Male L, Noble A, Atkinson J, Marson T. Measuring patient experience: a systematic review to evaluate psychometric properties of patient reported experience measures (PREMs) for emergency care service provision. Int J Qual Health Care. 2017;29(3):314–26.

Article  PubMed  PubMed Central  Google Scholar