"The impact of the Little Orange Book on how parents/carers manage symptoms of illness in children: A mixed methods study".

Abstract

Background: Parental decision-making regarding children’s healthcare represents a complex and difficult process. While there is general agreement that information and education may play a key role in supporting self-care and the use of health services, there is potential for information to increase, as well as reduce anxiety.   Objectives: This article summarises the key recommendations of an applied evaluation of a paediatric health resource, The Little Orange Book. Methods: A mixed-methods approach was used to collect data regarding parental perceptions on the health resource. Parents and carers in the North-East of England were invited to participate in an online survey and qualitative interviews. Qualitative data were analysed using thematic analysis and quantitative data analysed using descriptive statistical analytical methods. Results: One-hundred-and-twenty-eight parents completed the online survey and 16 took part in interviews. Three themes were identified within the data: Increasing parental empowerment in managing their child’s health, Equality of Access to Health-based Literature and Barriers and Facilitators to using the Little Orange Book. Conclusions: The Little Orange Book has the potential to be a useful form of information to support parents and carers in healthcare decisions. Further development should ensure inclusivity, widen access and view provision of the information as an opportunity for healthcare professionals to engage with parents.

Competing Interest Statement

The authors have declared no competing interest.

Funding Statement

Yes

Author Declarations

I confirm all relevant ethical guidelines have been followed, and any necessary IRB and/or ethics committee approvals have been obtained.

Yes

The details of the IRB/oversight body that provided approval or exemption for the research described are given below:

Ethical approval to conduct the evaluation was obtained from Northumbria University Health and Life Sciences Ethics Committee (reference number: 41385).

I confirm that all necessary patient/participant consent has been obtained and the appropriate institutional forms have been archived, and that any patient/participant/sample identifiers included were not known to anyone (e.g., hospital staff, patients or participants themselves) outside the research group so cannot be used to identify individuals.

Yes

I understand that all clinical trials and any other prospective interventional studies must be registered with an ICMJE-approved registry, such as ClinicalTrials.gov. I confirm that any such study reported in the manuscript has been registered and the trial registration ID is provided (note: if posting a prospective study registered retrospectively, please provide a statement in the trial ID field explaining why the study was not registered in advance).

Yes

I have followed all appropriate research reporting guidelines, such as any relevant EQUATOR Network research reporting checklist(s) and other pertinent material, if applicable.

Yes

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